General Chat

Brenda, I am glad Dan ate some breakfast and hope other family members can persuade him to eat when they visit. You must rest so you don't end up in the next bed at hospital!
I wondered if your son would come from Oz to see Dan, you will be pleased to see him too I expect but it will be hard for him to visit hospital again after all he went through with his poor wife not so long back.

Hope the care package can be organised soon and Dan will fight back some more

love
Lizxx

Brenda you Dan & family are still in my thoughts and prayers.
Hugs to you all xo

Was going to have a bit of a rest today,as son from Guernsey was coming,but hospital phoned to say we should come in as his sats were very low.When we went he was asleep all the time and hardly breathing.
Came home afternoon and son went back and he was sitting up having a cup of tea/So we went back and son was feeding him macaroni cheese.He took a cup of tea from me,but none of us knew if he recognised us.
Grandson coming tomorrow and son from Sydney(not the one in Melbourne Liz who lost his wife last year) will be here on Sunday.
Dan has given me so many scares,particularly this year,but he keeps fighting back.going to bed early tonight and just had a brandy!!

B renda you too need rest and care. Thoughts are with you, take care.

Wishing you a restful nights sleep Brenda. xx

Didn't realise you had another son in Oz Brenda. What a lot of people visiting, it's lovely if Dan recognises them and glad he was eating after the scare he gave you but it must be so tiring for you.
You deserved that brandy, hope it helped you sleep and today Dan will be stronger again

love
Lizxx

Doesnt this prove how tough the human body is? Brenda, you are a marvel. What wonderful women we have on here, much more inspiring than the celebrities we hear so much of. Thinking of you and hoping all will turn out as you hope.

Not managed to get on here for a few days as son from Oz has been using computer a lot for his work,.
Dan is up one day down another.
Still drifting in and out of consciousness.
Talked to Macmillan nurse yesterday and hope he can be transferred to a hospice soon.
Can't complain about the nurses though,they are all very good,but it's not the one to one care he had at home.
I find it tiring at the hospital every day,but he won't always eat his food unless I coax him and the nurses haven't got the time..

Brenda, I know it's tiring but you wouldn't have him go without his food would you ? You know you will do all you can to keep Dan comfy. I am glad you have the company of your son even if he is using the computer a lot it's still good to have someone to share the worry I expect.

I hope a good hospice can find room for Dan soon where he will have more peace perhaps and will be happier to eat their food without being coaxed.

Thinking of you both, take care love,

Lizxxx

Dan is going into the hospice today....but they say it is only for 2-3 weeks while I find a home.I hate him having to go through all this hassle as I thought it would be the last move,but we have had to settle for this as I haven't had time to look at homes yet.Our social worker says that they have suddenly found a bed for him in there as it's where he should have been in the first place.
He is a very good social worker and tries to pull out all the stops,but all these organisations have to go through the right channels!
Will see him this afternoon.....keep you posted!

hi brenda,hope dan is felling better.could i ask why dan is going into a hospice and not a nursing home?x

Hi Brenda, I am glad your social worker is doing his best and hope Dan will be more comfortable in the hospice and you can find time to check out a good place for him. Will you still have family around to help you with the checks and decision, it would be good if it didn't fall on your shoulders alone altho obviously you know Dan the best to know what would suit his needs, it would be nice to have input from family as well.

Take care of yourself, and hope things go to plan

Lizxx

Dan is now in the hospice and seems more settled.He has a beautiful room on his own.It's large with comfortable chairs,plasma TV,French windows onto a lovely patio.Had a long chat with a lovely young female doctor who understands his needs and concerns.Will go this afternoon but am leaving them to feed him etc.
Son has gone to London for 2 nights to see his friends and coming back on Sat before flying back to Oz on Sunday.It's no problem as I can appreciate a little time on my own!
Suzanne....He is in the hospice because his illness is terminal.We have known this since 2006 and he has lasted longer than the 2 years he was given and I believe if he hadn't been at home when he was so ill at Christmas he wouldn't be here now.
He has pulmonary fibrosis and there is no cure,it just gets worse and they can't believe how he has lasted this long.It is just the wait that we don't know if it will be this week or 3 months but the state he is in I would say it will be sooner rather than later but who are we to say?He is very poorly.

Brenda, I am pleased for both you and Dan that he is now in the hospice. Now you will get some rest and he will be well looked after and comfortable in his last days. And nice young nurses! What more could he want. At least, if he was well that is probably what he'd say!

Take care of you now and let them look after him.

Dan was very sleepy this afternoon.I went with a neighbour and he hardly recognised us...but a friend's daughter who is a nurse and who he's very fond of went at tea time and got his favourite ainsley Hariot soup down him,which I thought to take in today.
hope I see some improvement tomorrow.

Brenda good to hear Dan is now more comfortable and eating for someone else. You need to take care of yourself as well.
Keeping you all in my thooughts and prayers
Hugs
xo

I am glad Dan is in a nice place and being well looked after, it must make you feel a little easier in your mind. Make the most of the peace while your son is away and don't push yourself too hard. It's good that your neighbour could go with you to visit even if Dan wasn't awake but also lovely that a friend could feed him to save you doing it and worrying if he had or hadn't eaten.

Bless him, I hope he feels comfortable and at peace himself.

take care, will be thinking about you both

Lizxx

Not a good day.
Had a call from his nurse at 9'am to say that he had been calling out.I had things to do so went in this afternoon and he was cross with me and told me to get him out NOW.I want to go home......He had refused drugs and food.He was very confused thinking he was still in hospital.It upset me although I know that it wasn't really him and these things happen.
Son from Oz is with me tomorrow for the last time before flying home....Dan could be calm,or he could be feisty as he seems to fluctuate between the two.

Poor you Brenda, I can understand how upsetting it must be when Dan gets confused and is cross but I hope he will start to realise he is in a good place now and will take his drugs and eat too.

It will be hard for your son to go away again I expect but at least seeing Dan the way he is, feisty and then not, he will understand when you talk to him and update him how difficult things can be.

Take care and look after yourself as much as you can

Lizxx

Dan is getting weaker.was asleep most of the time we were there.
He did wake up before we left and I managed to get some strawberry blancmange down him,but he refused the puried chicken casserole.

My friend from Lancashire is coming tomorrow till Tues.I really think he is getting towards the end of his suffering.