General Chat

How about this one

At last the thread has appeared was beginning to think it was lost forever....not i am going to have a read.

See you shortly.

Hi all, I answered the other thread re fm, but can't find it. I also suffer this miserable ailment, and the best medicine so far is knowing that there are other people out there to empathise with. I see we have a man on here, was just wondering if only women suffer. Do any of you get the pain that feels like pins being driven up you fingernails?? This one is harder to cope with than the constant pains in muscles, joints ect, because it is so intense and sudden.. Hope you don't mind me butting in, but it is so nice to moan to other sufferers who can understand how one feels. Lots of love and sympathy, Nina from Sheffield.

Morning,

I was wondering if you help by letting me know what tests you have to have to determine wether you have Fibromyalgia?
x

Hi Falling Leaves,
Although I haven't been diagnosed with FM, but with musco-skeletal pain. I have most of the symptoms of FM. As I understand it. There are no specific test, ie blood or MRI scan for FM. But is diagnosed from the symptoms, after all other possible causes are ruled out.

These two websites will help explain FM;

http://www.arc.org.uk/arthinfo/patpubs/6013/6013.asp

http://www.ei-resource.org/illness-information/environmental-illnesses/fibromyalgia-(fms)/

Regards,
Steve

well in an hours time will be going back to Drs, Pain clinic Dr rang PCT about patches they wont let me have and have to try other tablets first if they dont work then they will let me have patches.

I feel so bad at the minute everything hurts so much am in tears with it and sooo tired, hubby has put sofa bed out again in front room so can spend day lying down but then he doesnt have to keep going up and down stairs to me.
Hes having to put me in wheelchair to go out as cant walk far but hey at least it gives him some exercise.

Really am at end of my tether now and yes i know (as i have been told by people in no uncertain terms) that other people have worse things than this but its really wearing me down, Tiddler got school trip on friday and she keeps asking me to go but i cant not even sure would make it onto the coach .

Sorry moan over with

Hope you are all coping ok.

d xx

well after a lot of phone calls between my dr his practice manager and the PCT advisor have been given Morphine oh yippee.

Dr said he would like to make me pain free oh wouldnt that be bliss.
He was going through T woman and she then said oh she is ill then now would anyone honestly make up this condition????

Going to take 1st one this evening and hopefully wont have any nasty effect on me.

d xx

Glad you got your morphine Dawnie, it's the only thing that cuts through the pain. I take 50mg slow release tablets twice a day, but sometimes I have to take a quick acting capsule as well when the pain is bad.
The patches I first tried didn't work and I was allergic to them.
I'm off to bed now as the fatigue is awful for me as well. hope you are doing the same.

Good luck with your tablets and hope you have no side effects.

Caz xx

Sorry to see you've been suffering so much Dawnie. I do hope the patches will give you the pain relief you so much need.

And the same wishes to you too Caz.

Although I haven't been diagnosed with FM. Often even worse than the pain. Is battling the incessant fatigue, headaches & foggy head.
In addition with the tramadol. My Dr recently put me on a trial of Nortriptyline to take at night. By the 3rd week, Im feeling even more tired than ever. Haven't taken 'em for last 2 nights & feel better for it. lol

Keep battling on ladies.

Steve
xx

Hi Caz and Stevie

Caz morphine is starting on 10mg slow release twice a day and see how we go. Stupid isnt it as pain clinic is in next county they would give me Bu Trans patches but my PCT wont and have had to struggle to get morphine.

Tramadol sent me weird so not allowed that again and have learnt my lesson with new drugs alway have to take it when someone is here as i do tend to react to a few, sure it would be easier to get some pot off my neighbours and be done with it (mind you knowing my luck would get done for it).

Have just had a couple hour nap and still feel exhausted.

d xx

Hi Dawnie and Steve, yes I agree the fatigue is my biggest symptom, but the pain is horrendous at times so can I say which is worse? I do one small job then have to sit and recover. The fibrofog gets me down as well, the times I have been stuck for a word and cannot for the life of me get it. It's worse on the phone, I was talking to the estate agent this morning and couldn't think what a ladder was called. In the end I said those long things you climb up, she must have thought I was crazy, after a few episodes like that I explained about fm.

Have they mentioned the quick acting booster capsules to you, my pain gets so bad they said I need them just to up the morphine dose sometimes. You will have to see how you go on with the 10mg before anything else though won't you. Keeping fingers crossed you have no bad effects with it.

Caz xx

just adding since i havent for a while,
hi all
caz and dawn too,
i had bad may and june with head pain and all over back shoulders neck, down right side too, arm and that,
saw my neurologist last week,
uped my dose of efexor, i sat crying infront of him
i told him i feel useless now,
had almost two weeks off work,
i get so down with it, cant do ironing as i used to, carry shopping, reach up for stuff,
but worse of all is making others who think your fit enough see it
however it turns out the only one inn work who has problem with it is the one whose our manager, a youngster, all the others understand and my boss that im not to over do it, and have been good,even keeping telling me to keep streess away, ha fat chance, lol

hope your morphines are helping dawnie,
im not allowed tramadol either, feel like an addict, lol
i can only take strong co-codamol and efexor,
hubby came with me to neuro guy, amd told him bought how forgetful i am, doc just smiled,
i dont think doc knows fibrofog is part of it too,
family have aall been so good helping to try keep me from overdoing it,

take care all
love to you all
xx

n

At the end of August I had more blood tests and my doc decided to ask for tests for Vitamin D deficiency which it seems is a new tack the medical profession are taking.

I was prescribed vit D and calcium tablets but now have to have an injection which is supposed to last a year.

When my doctor and I googled Vit D deficiency we found information that said it could be that many people told they have fibromyalgia, actually have vit D deficiency instead.

I have my jab next week so will let you know if I think it makes any difference.

Lizx

n

Nudging this up in case there is anyone else that can help Puss

Thanks Ann, last couple of days been having pain in the heel of my foot haven't had that before is there no where sacred xx

From what my sister says 'it' gets you in all sorts of places. Hope that pain eases for you soon. I guess you need to rest your foot for a while.

looks that way ann, guess i can do more research now xx

n