General Chat

same here puss, just plod on sometimes i think peeps think we are making it up cause they cant see it ....

hi you 2
just reading your messages,
ive also gained weight recently, not very happily,
i dont weigh myself obssesively, but after noticing it, i did, wish i hadnt,
well im not sure now if its down to the medication, efexor, (venlafaxine)
nothing in notes on it,
but trying to cut out all bits in between meals now,

hugs to all
glad your back lorraine

hard isn't it jgee i sometimes feel i can read my daughters grandads mind lol xx
hellow julieann i kept meaning to text ya to say i was coming back, but forgot as you do lol xxx how are you otherwise xx

well my dr told me weight gain was my age !!!!!!!

got appt for end of feb for pain clinic so cant wait.

I have permanent croak although have a difference of opinion if I have sjogrens as well or not

Wish I had more energy but dont so just taking it a day at a time and seeing what each day brings

d xx

wots that name you said dawn you think you may have,

puss , i ok, but ache so much still, still have head aches but not as bad as they were, and only last abotu 3-4 days instead of the 11 they were,

my wrists are quite painful, doc says i have a cyst in one, called a gangllion, which hurts like its broken, i got anti inflams, for that,

seeing my neurologist in feb 6th now again, hes kept eye on me for last year,
or so, but i dont think the tabs help much,

anyway, nice to see you girls still here
to catch up with

dawn thats riduculas of gp, honestly they just can't be bothered to explain properly, believe me if a tablet hads a side affect of weight gain you can say im going biglol, i just make myself walk twice a day with doggies althought it hurts i know im doing my best, don,t be fobbed of dawn, and i realise some days we haven't the energy to walk or anything else are you on lyrica, i understand if you don't want to say on the boards , thats what caused mine xxx

i read thats a side effect puss,
to lyrica,

i find my ribs really ache, on the right side,
last week it was all round my back where ribs are,
i fellt like bobby ball where he puts his hands on his waist high up , cos i was in so much pain, i didnt think tey took me seriously yer

we try to make lite of it dont we

i find the my leg keeps me awake its like sciatica, and the pain that gets me down is in my neck face and gums and shoulders , really drags me down, due a top up now lol, i try not to use the morph, but some days ive had enough xxx

Hi all, not sure why this thread lapsed, I suppose we were all busy with other things!

I get the pain in ribs a lot and am getting fatter and fatter through lack of exercise, it just hurts too much, my legs and feet are bad with arthritis, my knees especially and it hurts to sit down or get up again in my knees and hips, my shoulders hurt constantly and I think I have my jaw clenched so often, I just can't relax. The worst part of fm for me is the lack of decent sleep, never ever do I wake up feeling refreshed, even if I go back and have an extra hour or so, have done too much over the past three days so will be staying in bed longer tomorrow, had to get up for doc's apptmt today or I would have rested today, flipping chronic fatigue syndrome makes me feel useless. Have to go and get more blood tests for thyroid again so will do that this week when I find out the times - they only do them mornings at our surgery so that's out for me, but can go to local community hospital and get them done and can do other errands en route or after luckily. Anytime up to 4pm so will suit me better.

Am only on 5htp as I try not to use painkillers unless really sore and won't take any more antidepressants as they didn't help nor did the amitryp.for sleeping. The almost constant damp weather we have had over the last two years has got me down too.

Take care and stay warm, I am going to have to watch my diet now and try and lost at least a stone, sick of looking like Mr Blobby!

LIzxx

Evening Ladies,
Forgive me for reading through your thead. Dawnie mentioned in a post last week saying she had FM, my curiosity lead me to google this. The list of symptoms ticked many of the boxes regarding the over 7yrs of neck pain & over 5 years of back hip & leg pain, disturbed vision, etc I've suffered from.
Although I haven't been diagnosed with FM & may not be. But after x-ray, numerous blood tests, 2 MRIs physio etc.....sounds familiar? The closest they've got is musco-skeletal pain. An ambigious name, bit like calling a broken arm - arm ache.
This just to let you know I understand the pain, headaches, tiredness & frustration you are enduring. The trying to explain your illness to Dr or consultant & just getting that blank look on their face, as if they don't believe you.
Try to keep positive ladies & maybe we'll all beat this.

Regards,
Steve.

hi steve
your welcome
anyone is on here

the musculo skeletal diagnosis you got is like i had from a rheumatologist,
he diagnosed it cos he was annoyed my GP made a diagnosis,
my GP asked him to see me for fibromyalgia
he wrote to my GP saying it was NOT that it was Musculo skel,
my GP laughed his head off when i saw him, he said its the same thing, he knew why the doc had said he was wrong, it was a power thing, tut
bleepin specialist,
anyways my GP has been sympathetic thankfully
tho theres not much he can give me to treat it,
as it doesnt respond to so much stuff,

FM is also been linked to post traumatic stress and a few other things,
theres a god fibromyalgia write up on the arthritus website ARC

HI Julie Ann,
Thanks for the web site tip, have added it to my favorites. Originally found FM info on The Environmental Illness resource site.

I had results from consultant regarding MRI 2 wks ago. They can't find anything again, so re-referred back to the pain clinic. She also sent them a reminder, as they still haven't followed up the neck denevation treatment I had last May.

Anyway I think its time for a pint.

Nite
Steve.

hi all
your welcome steve for the info

i attended a pain clinic but after several jabs in shoulders with painrelief
i ended up with the neurologist,
to rule out any major problem with brain,
relieved he found a brain actually
anyway, hes got me on medication im on
it doesnt help with the pain from FM much, just headaches

it doesnt get rid of um completely, just makes um easier

hope everyones managing to keep warm
and keepin cheerful
love
julie

i bent down and have been walking like a 110 yr od today but im smiling and staying that way at least when i reach a 110 i will know how to walk lol, ruddy illnessxxxxxxxx

Hi. I have never written anything on here before but here goes. I was only diagnosed last April with Fibro but understand I may have had it for 40 years, no wonder I have always ached and felt awful. I am glad to read that my weight gain probably as a lot to do with the Lyrica, I have put on over 2stone and am not eating anything different, apart from chocs at Christmas. The only thing I can say about Lyrica is it made a new person of me althougha much fatter one. The pains in my legs, arms and face are not as bad now and that in itself makes me feel better.

I am finding sleeping very difficult wake up at least three times per night but I like to read so providing my other half is asleep I pick up a book..

Hope this thread keeps running as I find it very interesting.

Barbara

I have a lot of problems when it comes to sleep. I've just got myself the Paul McKenna "I Can Make You Sleep" book. It has a CD with it. I'll let you know how I get on with it. It's not just aimed at insomniacs but also those who don't get refreshing sleep or who wake up a lot during the night.

I don't know if people noticed but I've not been around much since December. I had problems start up with pains in my eyes and increased photophobia. My research and discussion with the GP seems to indicate that it's to do with the muscles going into spasm. I've finally got the eye clinic appointment through for saturday (it's only taken two months and a kick up the bum from the GP). More than any other of my symptoms, this has really got me down.

I've also just started Tramadol instead of Codeine as I appear to have developed an allergy to the latter and it was making me incredibly nauseous. It seems to agree with me so far.

Barbara, I think I've been very lucky with Lyrica in that I didn't gain weight. In fact, as I made a concentrated effort I've lost weight during the time I've been on it. (over a stone... it took me about 7 months). I'm usually unlucky with side affects, I get the rare ones no one else does but I've escaped the many pit falls of Lyrica. What dose are you on? Perhaps you need to look at reducing it slightly, or maybe other factors have changed that you've not noticed. Have you mentioned it to your GP? They might have some advice.

hello everyone.
Barbara Ihave put on so much weight and am not on Lyrica my doctor says its not any of the pills just my age, I am only 41.

Cant wait for the end of month got the pain clinic so hoping they wille able to sort me out.

I have never felt as ill as I do now, the sjogrens has left me with an almost permanent husky voice and a cough and am so fed up with it all dont have a life any more just an existance.

Liz my Dr upped my co-codamol and itmade me so sick so changed it to dihydrocodeine and I have to weigh up whichi s easiest to put up with pain or being sick. Tramadol really sent me doolally.
have learnt over the years not to start any new tablets unless hubby is around as I seem to react more and more to tablets.

Take care everyone

d xx

hi all
reading on here about weight gain,
reasureing in a way , ive put on weight a bit lately,
bout a stone over last few months, its hard to get off,
i wouldnt mind reducing it a bit, so i felt comfy, but its almost as tho my bodys just swelling up sometimes,

what ever i wear im uncomfy, my ribs ache,

wrist is still bad,
saw my neurologist week before last , he said to carry on taking the efexor, (venlafaxine)
cos they have had an improvement in my ability to manage FM
i told him bout my weight and apparenetly these tablets are sometiomes used to help weight loss, i said well theyve had oposite effect on me,
i also read they can effect weight,
hes suggested staying on dosage till july now and see him then

the problem is he said you never get rid of symptoms completely, just make them easier to cope with,
and less painful

well i came home and hubby said what doc say,
i told him he thinks im doing well,
im sure hubby thougth that meant im beter mirraculous cure,
i can now decorate the house,
cos hes flippiin ticked and winged about doing it himself,
lol
sending you all hugs

Dawnie, I'm used to the pain, but I couldn't handle the feeling sick.

I'm getting on with the Tramadol pretty well, but have discovered today that I can't take them without food (or I get slightly loopy too LOL). Last time I listen to what I find on a website LOL.

Julie, I was devastated when the consultant told me in August that there was little chance of me making any significant improvement from where I'm at now and the best I can hope for is to not get worse, because it's been 14 years now.