General Chat

lol, julie before i had the pillow my neck would hurt all day and i wouldnt be able to turn my neck, now its ok i take that with me too lol.

talk about the kitchen sink
you got the better version, take you bed, lol

hello,
I live in upstate NY. My doc tells me that fm has effected more women than men. There are 18 trigger points and I have 15. Sometimes just touching my skin hurts. I sometimes get burning in my lower back and right hip area. Lyrica helps with the burning.I also take a Carisoprodal for pain and spasms. Plus a few other Rx.
Athritis is an issue as well. This month I have to have a knee replacement. Not looking forward to that, that's for sure. When reading the post of other people, sounds like we are all pretty much in the same boat. Thanks for letting me know that I am not the only one who deals with fm. People look at you and see that your healthy outside. They have no idea what the inside is like. Good thing I have a patient husband. Take care and blessings to you all. If these are the golden years I want to know what's so golden about them. Ha Ha

Hello Jean, are you new on here? There are several fm threads, so if you haven't seen them all, just type fibromyalgia in the search box and you can see how many of us here are affected.
You are lucky having a good husband, my partner won't understand how bad I feel some days and I have chronic fatigue syndrome too, and he allows his son of 26 to call me lazy!
His other son is moving from the U.K. to live in N.Y. at the end of November, he has his head full of ideas but doesn't have a job to go to yet. I also have a friend living in Scotia, N.Y.

Good luck with the knee replacement op - I am sure it will go well, I know several people who have had it done. I won't be surprised if I have to have mine done at some stage, I am 60 now and have had arthritis in both knees for several years.

Liz

hi jean and welcome
it helps knowing others feel as you do,
a liz says theres lots on here feell free to have look at all threads,
and add as you wish, its there to help you,
hugs to liz and jean
and all others

got up smorning, head feels bad today, and back bin painfull more too this week, thats the damp weather i think
it took my reacent spell in hospital to make some work collegues to realise how bad it is sthose who didnt have clue, cos i always put brave face on, (to be honest feel guilty if i coment in work or ask for time off)
boss is good tho and pays me still was off a week,
family thankgod (now are supportive) hubby wasnt, but does now do washing and hoovering, his fling made me have set back last year, but he has made up for it since i do admit

wishing you all a good weekend
and hugs to all

Hi Julie Ann

my shin bones have been painful all week and the pain seems to shoot up themj when I walk,no to mention the shoulder and elbow that are useless at moment, havent been able to do half the exercises the clinic gave me.

Is a godsend having the buspass now as today just limped to bus stop with tiddler and went round corner to shop to get the milk and back on bus instead of having to get car out and the pain of driving.

Sure weather is making things worse.

looked a real dork at meeting at laddos school cos words wouldnt come out tey must of thought i was the one with special needs.

Wouldbe nice if the amitriptyline worked and got a full nights sleep even with them doubling it hasnt made a difference

Hi all, I bet we are all feeling worse with the rain and cold weather. I am so hoping Malta stays warm while I am there in a couple of weeks so I can get some heat in my bones and joints and relax too.

Dawn, I have given up on the amitrip. as it doesn't do anything for me except maybe make me a bit dopier when I get up.

Will reply to your pm later.
Take care all,
Lizx

hi all
well suprised to see the shin pain is a symptom too, wondered why both mine are hurting ths weekend, and today worse, hurts to walk

as for amitriptyline been taking um off and on, took one early hours sunday got up at 9 sunday morning couldnt open my eyes stayed in bed till 1030am, son had gne to play footy OH had gone to watch,

am in process of writing a note to my gp to leave there tomorrow cos i cant be bothered to sit and wait to forget what i want,
see if i can have the meds like puss is taking, and blood pressure tabs,
take it easy all

duloxetine is the medication puss is on,
she says that helps FM

did i mention i made a complaint against my hospital of the lack of response for treatment for headpain/blood pressure
well i did last week, to the manager

Wish I could go to the hospital my GP keeps saying I can deal with it got it in my shoulder blade at the moment going up my neck to my head.

I seem to have it everywhere then I think to myself surely this cant all be fm and arthritis but I dont know as the doc wont let me see anyone

my hubby is marvelous but met an old friend the other day hadnt seen for ages her hubby came up give me hug and and a slap on the back it was like an electric shock going through my body

To each and everyone of you that has fm A Great Big {{{{{{{{HUG}}}}}}}}

Love Linda xx

linda
the only way i got to see a doc at the hospital was being admitted after hubby took me there other week with severe head pain,
still waiting,

i have health plan threw hubbys works and manage a lot of specialist thru that,
they dont do much though

Julie its horrible when you have it in the head soooo painful

Linda xx

my pain specialist thinks it may not be down to FM now, she says you definately have FM but need to findout what causing the headaches eliminate stuff first,
she wants me to have scan, so i gota see neurologist on 10th of october now, and also get blood pressure sorted which my one GP is stallin over, though he agrees its high,he didnt like being told by specialist to give me medication, therefore i have to write note to other doc i normally see

Hello all ...All these systems are the same as i get but my doctor says that i have Polymyalgia i cannot see any difference.
My pain is in my shoulders hips and legs some times i have a real job to walk, i take tramadol for the pain and find that they do help,i am also on steroids 10 mg a day.

Val

Seems that the only way to get a definite diagnosis is to get to see a rheumatologist. I had to go through so many tests before my Dr would refer me even when I asked.

Mind you rheumatologist diagnosed several thngs not just the FM.

i am still waiting to hear from the musculoskeletal man at the hospital

my dr sent the letter to him 3 weeks ago marked urgent lol

today my hips are unbearable,also the left side of my head.

val polymyalgia, is what they now call fibromyalgia, i read it somewhere recently, oh yeh arthritis mag in docs surgery,

i saw a rheumatologist, he was very arogant, he said you dont have FM ill write to your gp tellin him
he wrote saying i had myofacailskeletal, i think was the term, anyway it was the medical term for FM,
my gp who diagnosed me had his feet up on table chuckling t himself at the arogance of the doctor

Thanks for that Julie ..i have been reading these threads on FM for ages thinking "that sounds like me" now i know that i have the same as all of you.

I was diagnosed 15 months ago and was on a high dose of steroids but managed to reduce them, but just recently had to put them up again.
Will watch this thread with interest.

Val

glad to hear your joining us val, well you know what i mean not glad you suffering but when you can put a name to what your suffering its unbelievable relief isnt it, for years i kept getting your perfectly healthy young women, everything is 'normal' i used ot think this aint normal,
i only got my hysterectomy after the same doctor said he could do it on my health plan, money spoke, he previously said all was normal, until i kept on and on, then money spoke,
its mad isnt it,
take care of your self and keep warm, and dont do as i do and think you dont need the tramadol,
i suffer the nexct day, it takes 2 days to get back to some kind of relief, i should know better !!!!!
:-)

Julie ...you are right about the tramodol...i need them at the moment i have been very bad there last couple of weeks, on top of all this i have had Celulitis in my leg omg was that painful,

Take care

Val