General Chat

Linda, I am speechless with rage! How do I get my MPs email address? I will be writing.How is your husband today? Deanna

Linda my mum is in Scotland so I don't know if they are doing it as well but I have phoned my brother and he is going to find out

Hi Linda, TOTALLY WRONG!! cnt believe this country anymore..my dad recently caught septacemia and almost died,he was in itensive care on life support for three weeks..the docs told my mum there was nothing further they could do at one point BUT THEN they got permission to give my dad a very expensive drug from the local health authority,cost £10.000 without it he wouldnt be here but its stresses what cost can you put on a life?? if my dad had been 55+, or a smoker or been seriously ill b4 then they wouldnt have given permission to be administered this drug. Hope you get justice for your hubby..good luck.xcherie.x

If anyone wants to find their MP's email or postal address go to www(.)locata(.)co(.)uk/commons/ You needn't know their name - you can trace by constituency! Come on - lets all do this! It isn't just Vic and Linda that will suffer - YOU may too!! Magsxx

For your MP www(.)parliament.uk/directories Full list there and if no e mail please write. Thank you. Linda x

hope you have success with your MP, try daily papers, take it to the press, GMTV love stories like this, get as much publicity as you can wish you well julie

its cruel and unkind and yet again shows up the funding fiasco for health in our country kaz ps at risk of getting yelled at........are most people aware that these medications are only prescribed for a term of 2 years maximum as this is the length of time that they work for and that are not a cure but that can only help maintain a person at the level they are at for that limited time??

Is that true Kaz? In which case it is even more of a disgrace! If that would be possible. Deanna

Hello Linda When I heard this on the news yesterday I thought about You and your husband . I will definitely support you in your campaign. Love Bren

it is true but only because the medication only has effect for 2 years not because it is withdrawn........... and it only helps maintain at the level the person is at it doesnt cure.... basically after 2 years they have no effect kaz

Nudging because this is very important to everyone!!!! Deanna

Yes, you are right the effect is limited but even a few months will give someone time to sort out their affairs and have some quality time with their family. The improvement in my own husband has been quite dramatic and I value every precious moment. For instance I have explained to him what this all means and he understands and I know a few short months ago it would just have gone over his head! I am not knocking the NHS we have had excellent service from them it is just the possible withdrawal of the medication. Linda x

Hi Linda, I will write. My mother has alzheimers and has been on aricept for about two years. She has been lucky. However, her condition seems to be deteriorating now and I know she is going to be reassessed. If she hadn't been on aricept for this time I am sure she would have got worse much more quickly. My father who is a carer would have had to give up and put her in a home as he is 83. We all chip in with help when we can but the emotional stress is great. If the drugs are not availble, the patiets will have a shorter quality of life and will need a lot more NHS money spent on them so it seems to be saving money in the short term but not looking at it long term. THat rambled on a bit -sorry. Lots of love to you and your husband. Look after yourself CHristine x

dont you sometimes feel dementia is a forgotten condition, there is so little education of the subject and the only time it seems to get mentioned is briefly when someone high profiled dies, then there might be a tiny mention that the person was suffering from it in some form.....almost as a small aside??? kaz

Hi Linda Having worked with people that suffer from dementia i am flabberghasted that they could even consider withdrawing this treatment. I will be writing a very strong letter to my M.P. Do these so called experts not realise that these patients get confused and frustrated enough without them making it worse by taking away their life line Keep up the protest as I'm right beside you Jan

Linda, I have just this morning received a letter from my MP Mark Hendrick, asking for my comments on various issues, amongst them the NHS. I will reply immediately, with this issue top of the list. Love June xx

Nudge for Linda If you haven't yet contacted your MP about this or registered your protest - please would you give it a thought - Dementia could affect you directly or indirectly now or in the future - but the time to protest is now! Thanks Magsxx

Well, I've done it now. still got to write to others. Deanna

My grandad had it and 2/3 of my aunts had it they all died with it my mum has it she stays in Scotland so I don't know if they are doing it as well I phoned my brother to tell him and he is going to check it out

if you google alzheimers and go to the alzheimers site there are links to click on to mail mps direct and links to the NICE site to leave your comments kaz