General Chat

it's taking time but I have no doubt he'll get there eventually

My then to be D-I-L had a rarer form of GB, she had CIDP, she was in hospital for a couple of months,and made a complete recovery, she married and has had two children. She was in her early 20's when she got it, awful condition, but she is proof, you can recover :-D

a few famous people have had it too - Barbara Windsor had a form of it and recovered so there is plenty of reason to hope for a complete recovery - the fact that he is so positive and uncomplaining after over four years is a miracle - don't think I'd be that stoic

I think some people are luckier than others and get better quicker but I am pleased your relative is being so positive and making progress still, and managing to live fairly independently too.

A woman I worked with some years ago developed this illness while on holiday in France with her family, she was poorly for some months but did get back to pretty much normal after about a year. She had young children at the time too.

Hope things continue to go well for your relative

Lizx

been talking to my cousin this evening - it's been five years now and he still can't walk and is now of the opinion he never will walk again - seems to have come to terms with it though and is making the most of his life - absolutely tragic - what a dreadful disease this is

Ann

This is the first time I've seen this thread. I am so sorry your cousin has this dreadful disease and is taking so long to recover but great to hear he is managing to remain positive.

My father got it at the age of 74. He spent 8 months in hospital and a further 8 months living with me before he was able to go back to his own bungalow. His hands never fully recovered, staying very bent and crooked. Sheer determination got him on his feet again though he could only walk, or rather shuffle, short distances. He needed help around the home but he went on to live a comfortable happy and independent life for many years.

When Dad died at the age of 93 we asked that, instead of flowers, people should donate to the Guillain Barre Syndrome Support group and were amazed to raise £1200.

My very best wishes to your cousin.

thank you Vera - what a wonderful thing to do - to raise all that money - I'd never heard of it until Mark got it

he's managed to go on three holidays this year - twice on a cruise, so he's trying not to let it hold him back

<3 <3 <3

Ann what a dreadful time your cousin has had to endure over the last five years. Thank God he has the strength of character to stay positive. I hope he continues to enjoy life in whatever way he can. <3

thank you Paula - he's a great guy - there's only him and his brother, but he lives in Edinburgh - he does have an excellent circle of friends in Weston Super Mare though and they are very caring