General Chat

thanks folks - much appreciated

Ann XXXXX

Joyce - just noticed what you posted!!! You are very kind, but I think we all have paid our dues over the years and the majority of us thankfully have not had to dip into the pot to reclaim any - Mark certainly hasn't for sure

Ann X

Good news for Mark then been thinking about him and wondering how it was going.

Linda x

At last Mark is making some progress - he can now go in a wheelchair because his body is strong enough to support himself - his transfer to Weston super mare is imminent but the helicopter seems to be a no no because it can't be away from base for the time it would take to get Mark to Weston and back again. They are talking of transferring him in a new large ambulance made for extra large people cos it has a bed and a hoist in it. He is seeing the outside world now for the first time in months - sister-in-law took him to the hospital canteen for a cooked breakfast which lifted his spiritis and also to Costa Coffee and then out into the fresh air for the first time.

Forgot to mention that yesterday's Daily Mail carried a story of a guy who had suffered this disease - covered the whole of the centre pages - I was shocked to hear that this syndrome can be caused by something as innocuous as a tummy upset, a cold or even a flu jab!! This man has written a book all about it

Really great news xx

thanks Linda - it is isn't it!!!

My, he's had a long old fight already.....and I thought he had already been transferred down there......I hope they sort out things for him soon and he can be nearer home and family......x

It will certainly give his morale a boost if he is able to venture out a little like that.
I bet he enjoyed that breakfast !

Let's hope he can be back in his home area for further recovery soon.

Gwyn

well apparently "wicked" was the way he described it so I suspect he rather liked it!!! Not sure if he was able to feed himself, by sister in law was with him!!

Thank you all for your good wishes, much appreciated and I shall pass them on to him when I write next

Glad to hear that he is progressing. It must have been a great morale booster for him to go to the canteen.

I read that story in the D Mail. I had not realised that it varied so much in severity and, like you was shocked to read that a tummy upset or a cold could spark it off.

I do hope that Mark will continue to progress and that he is soon transferred to W S Mare.

Ann
Glos

Hi Ann
I am so happy that Mark is improving.
Going outside in the fresh air will help with his recovery I am sure. There is nothing worse than looking at 4 walls all day.
I wish him all the best. He has a long road to travel but I'm sure he will get there.

Kind Regards
Jackie

many thanks for that message Jackie - I shall be relaying them all to Mark when I write to him this week!! Everyone has been so very kind

Ann XX

have just written a letter to Mark and printed off Page 6 of this thread for him to see all the good wishes he has been sent - think he'll be very surprised and very touched as well - thank you all

am nudging this for another person who has a rellie suffering from this dreadful condition - I know Mark is still in Weston-Super-Mare where he was transferred from Carlisle - I have to ring this evening to get an update, but when I last rang WSM he was still only able to move his hands and able to sit in a wheelchair

well all these years later and my cousin is back home in Weston-super-Mare but is still unable to walk unaided - has a busy schedule going to the gym and hydrotherapy sessions - still wheelchair bound but can get around his bungalow and make his own meals - he has carers in as well - he is still so upbeat and uncomplaining

That's a remarkable adaptation to such a chronic disease, well done him :-D

Sue x

we're hopeful he will make full reovery but it sure is taking a long long time

It does take some time doesn't it? I am pleased he is back home and seemingly doing well. I hope that he will gradually improve but well done him for being so upbeat. Thanks for updating us.

Such a horrible disease AnnC, very pleased to read he is making a recoveryal though very slow!!

jude x