General Chat

Hello everyone...

Sorry not been around much lately, Back to work full time again onw and been so tired in the evenings..Am hoping to start decorating the lounge in the nxt few weeks so will be busy day and night but you know what they say about idle hands and all that...

Its lovely to be back at work seeing all the children again..Best thing i ever did was accepting this job, I feel so good in myself..

Sorry for everyones troubles/hospital visits/pills/family probs and all the other stuff everyone has going on in their lives.I wish you all a peaceful evening and take each day as it comes and i hope you are feeling stronger tomorrow and remember, a happy heart makes the face cheerful..x

Love to you all
Kerry

Just to let you know there will be no bed time stories tonight...have just measured my legs and they appear to have shrunk two inches...need to wrap them up in cottonwool for the night because I will need them again tomorrow...the porters did not turn up today!!!!!!!!! have since discovered that one was too busy having a birthday bash and she didn't even bother to notify me... will not name names but watch this space.lol.lol.lol.

Seriously though, enjoy what is left of this evening and I hope you all manage to sleep well xxxx

JoycePxxxxxxxxxxxxxxxx

Hello all,

Liz I am glad you are taking positive steps in exploring your options :-)

For all you like me in constant pain- I made a decision today that I would re-jig my meds and try to get some control of the pain.

I have always been loathe to take so much analgesia as I take so many other meds but I am going to try various combinations for a week. They tried this in hospital and I do know what I can combine so don't worry :-))

My nurses keep saying to keep them topped up but I have always been so stubborn in this regard.

I feel that I am at the stage where if I can control some of the pain perhaps my mental attitude will improve. I can honestly say that over the past few weeks I have had visions of me hanging from the banisters and it was a comfort. I WONT DO IT COS I AM TOO MUCH OF A COWARD AND I HAVE OH AND CHILDREN.

Lots of people know me as a fun loving nutter and it has become really difficult to keep that persona alive.
I can call upon my alter ego and post jokes and add to threads but then the dark side creeps in and I crawl off again for a while.

I took full meds this morning and then rested in bed for 4 hours, I managed to get some sleep which was wonderful.

I have three more med appointments this week...oh goody! and three booked for next week. I am determined to get a proper diagnosis as to whether it is nerve or vascular damage and GP is supporting this.

Sorry to waffle on. I hope that everyone on here gets the help they need and deserve, it's a pity that sometimes a fight is needed to get it.

Love to all

Sue xx

Hi Sue, it's nice to see you have posted again,and you seem more positive. I take a high dose of Tramadol twice a day but still need to take Neurofen to top it up. I am waiting for an appointment to see pain management clinic, is there any chance your doctor could put you foreward for it? I take 21 tablets a day and some of them are chemo but I still think my painkillers are the most important and couldn't do without them, and neither should you.
Hello to every one else, got to go in bath now as we leave to go to hospital at eight.

Love and hugs to you all.
Caz xx

Hi Gang Love and big hugs to you all. Deana i am glad you had a nice meal, sue,caz and elaine sorry your in so much pain, mary I hope your daughter gets some money for your lovely grand children. carole and joyce I hope your ok. call back in later. love shaz

Good afternoon,

Just got back from latest physio :-(( so will be tired this afternoon.

Caz - I cannot take morphine based analgesia (apart from DF118s which I am used to). Tramadol, Pethedine etc., all drop my already low blood pressure. It was quite scary in hospital when they gave me a minimum dose in recovery (they wanted to try it not me) spent the next hour with legs up, head back and BP cuff being inflated every 5 minutes surrounded by nurses!

So I have a drawer full of pain killers and it is really just a case of trial and error at the moment.

Eileen - I have a daughter with MS and she puts me to shame so I understand your feelings completely.

Love to everyone who is suffering

Sue xx

afternoon everyone hi eileen i can relate to you as a few weeks ago i to lost a aunt to lukemea i miss her awfully and some days i just sit and think maybe i could have helped her more or done more for her ive been told these thoughts are a nomal part of greveing im sure you like me done all we could .your daughter sounds like a very brave girl ,im here anytime you want a chat carole ,deanna,joyce ,how are you doing today and everyone whoms names ive not mentioned hope you all having a good day , well ive been up most of night with hubby as he not to well ,he has this awauful cough thats kept him awake so we were up at 3 this morning then he started gettin breathless a bit and cheast pains coming and going got him into se doc what a waste of time that was never even listened to his cheast and percribed antibotics and diagnosed broncitus all just by looking at him never even cheaked up on cheast pains .so im keepin a eye on him he seems a little better im hoping the breathless and pains are just through him coughing ,well enough of me now thank you for all your pms yesterday whaen i needed them catch up with you all soon hugs xxelaine xx

Eileen welcome back - your heart is so full, please don't try and get off the Amitripylline now, when you are overwhelmed with worry. We all need a bit of a crutch at some point and for some of us, taking a little pill each day is no longer a crutch, just a part of who we are. It helps keep a balance, emotions are still there, we are just more in control of them. (if that makes sense, it did to me!!)

Morning all - I am up earlier today, feeling totally itchy, frantic actually. I worked yesterday evening and they have declared an outbreak of unpleasant little mites on the skin (who have a name) on my 58-bed unit, Just thinking about it and I start to scratch!!!! Won't last long, every patient will be treated, symptoms or not, and staff if they are compliant But what a lot of work, and laundry.

Life isn't dull around here. . . . .

Thinking of you all, Deanna you are getting pretty good at reciting the list of names, I am feeling old, so I won't even try, just sending support,and hugs to those who need it.You know who you are.
Love
Mary

Eileen, you are having a tough time love.
You will be able to handle it better joining in with us.... we all have problems, some big, some small, but all big to us.

You are never alone on this thread love.
Some really nice people on here.

Sue honey.... take the pain killers.... you don't have to live like that.
And you are right about the fighting for help.
I am giving Allan's medicines enough time to show me that he is able to cope daily... and if they don't I am phoning his doctor.
He is such an active man and he is not happy being infirm when there is something which could be done.

Joyce P, who are the porters who let you down?
I feel it is a name you have given and I have missed.
Hope they were not helpers.... I'd give them birthday bash.... well,,, some kind of bash anyway.

Caz Y.... how are you doing on your new tablets?
Any ill effects? I hope not, you have had enough haven't you?
A nice easy week of pills would be good!

Right everyone ... look after yourselves, and I'll see you when you decide to come on. I just hope you are all well.

Carole T, Ann gg , Kathy, Liz, Ben. Dave, Malc,
Betty, Sharon, Ann, Gail, Eleanor, Joy, Jules, Caz C.... and *uncle Tom Cobbly and all*...... ;-0)
Love
Deanna XX

nudge n ~~~~~ for everyone xxx

Eileen, that is not a whinge... that is an honest emotion all of us feel sometimes.

We all do things for those we love, and we want to.... but sometimes we are just *exhausted*. We still do it, but we wish we didn't have to.
That does not make us bad people.... that makes us human.

You are having a bad time just now, and you are worried, tired, and to add to all that.... you feel guilty!!
You are a mother love, that is what we do.... we feel guilty, for just about everything. ;-0)

I feel too tired to be on here tonight, and that makes me feel guilty. I never seem to be able to help all the friends that I want to on here... and that makes me feel guilty.... give me a list and I'll tick it off for you!! ;-0)

You are not alone Eileen.
Chin up and don't expect so much from yourself... you sound like a good mother to me.

Deanna XX

evening every one. Haven't been on much, I'm feeling the strain a bit with work, taking Mum to visit Dad in hospital doing 70 mile round trips, oh wanting attention and (grown up) kids. Now my friend is ill and I'm really worried about her. She looked awful when I called to take her flowers. She has lost a stone in weight in two weeks. Can't stop being sick.

Well I have to walk our dog then I'm going to hit the sack!

Love to you all nice to know you will all be thinking of me, as I am thinking of you xxxx

hi all elaine twinkle i hope your hubby gets better soon hun and well done for going to the hospital xx carole tinker im glad your dad is getting better love and i hope your work mate gets better soon to xx sue m please come back to the thread when you feel you need to talk holding your emotions in is not good let your husband know how your feeling it will help xx
joyce p you make me laugh with your post hun xx
betty i have found out a few interesting things about my relies thanks for asking about me xx
Ellen hun i know how you feel i lost my dad last year i have the guilt of not bringing him home to die and the day before he past away he asked me what was wrong with him i told him a lie and that makes me feel so guilty and im sorry your daughter is having a bad time xx
sorry if i have missed anyone

love and hugs to all

carolina xx

Hi Everyone,
nite, nite Carole hope that your friend improves soon and that your father and mother are well, hopefully your dad will soon be home so that will take some of the strain of your shoulders.
Liz if you are looking in i hope that you are well and that you got something sorted out the other day, did you have another counselling session yet?, hope that it went well if you did and that you got the venue changed so that you do not have the long distance to travel.
Mary hope that your daughter got the money fixed up, my daughter had trouble trying to get money for her son even when the family court granted her it, he would leave it until she brought him to court and every time he would hand it to her on the court steps.
Kerry dont overdo the work.
Ycaz hope that your hospital visit went well to-day.
Elaine hope that everything is well for you and husband.
Eileen you have a lot to cope with at the moment, i when i found out that my mother was dying from a brain tumour for five years used to pray that i would die instead she was only 53 and had, had it for 5 years left behind 16 children i still feel guilty because she did not have a life for herself where she could go out without bringing a few of us with her.She is gone now 27 years.Eileen everyones pain is different and takes time to recede but when it does we start to remember the happy times that we spent to-gether,my sister died 2 years ago and my father 6.
Eileen on a lighter note I did notice that you changed your thread name to Claddagh, reminder of the Claddagh ring the old Irish wedding ring assosiated with Co. Galway. If it is facing towards your hand it means that you are free but if it is facing towards the tip of your finger it means that you are married. Do you have rellies from there. I changed my name from John to my own as when I came on here I was looking for my husbands birth and his parents marraige certs. I called myself Innisfree it is from a poem by W.B YEATS. from Co. Sligo. called The Lake Isle of Innisfree.
BEN, JULES SUE, DEANNA, DAVE, JOYCEP, JOYCE, JOY, CAROLINA,MALC,JANET, SHARON,AND ANYONE THAT I HAVE FORGOTTEN I HOPE TO TALK TO YOU SOON AGAIN AND TAKE CARE.
BLESS,
BETTY.

I had my 4th session of therapy today (half way) and came out feeling like I was in a round room and asked to sit in the corner.
I really had to sit in the car and pull myself together before I drove home.
I really feel like giving up the treatment at the moment I am so lost with it.

Malc

Hi all, sorry haven't posted much, am so tired. All is ok at the mo and I am still trying to clear some of my hoarded up papers etc. My son made me get rid of some of the paperbacks stored at his house on Tuesday evening, which I found easy for some things but hard for others. I thought he understood my ocd but didn't feel like it yesterday. I can see he is under a lot of pressure in many ways so don't want to stress him too much so did manage to get rid of a couple of boxes of books, he will take them to a boot sale at the weekend.

Malc,do try to stick with the therapy for a while, it might hurt at first but I am sure it will help in time.

Betty, thanks my love, I am taking things slowly with counsellor and yes, went to easier venue which I will stick with now.

MaxiMary, hope things are improving for you and Colleen, I keep thinking about you.

O.h. has taken the old car, 'my' Sierra to be mot'd, he left it at the garage and I picked him up when he left off so hope it can be done and serviced without too much expense so he still has a car to use and I can keep using the Fiesta! He still hasn't heard back from dvla, it is disgusting to keep someone hanging on so long.
Love and hugs to everyone I haven't mentioned and/or I owe pms and emails to, my head is a real muddle at the mo so please forgive me.
Lizxxxx

Hi Liz,
Well done for sorting out those books with your son.
Do you think it would be any good to have a sort out for a car boot, to make some money towards your holiday? I'm sorry you are all under so much preasure. It must be comforting for you to have all your stuff round you and a real painful experience to see others trying to take it away from you. But you know the end result will be worth it (one day) xxx

Have to go to work right now, so I'll say good day to you all love carole xxx

Hi all I feel a bit tired and shaky this morning going out later. going to anxiety classes again tonight. sorry cant write anymore just cant concentrate. see later love to you all shaz

morning everyone carole hope your ok hun you have a lot to cope with right now but you must look after yourself as well or you will were yourself out ,deanna hope you and allien are ok ,hows there new meds going ?,thinking of you both ,im glad to report hubby alot better today ,im gona try well i did say try and go to town on my own today i have been trying since 10 this morning and still ant got there but ant been on my own since january ,feel so stupid ,hope every one whom ive not mentioned is having a good day ill catch you all latter hugs to all xxelaine xx

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