General Chat

Hello Jean, are you new on here? There are several fm threads, so if you haven't seen them all, just type fibromyalgia in the search box and you can see how many of us here are affected.
You are lucky having a good husband, my partner won't understand how bad I feel some days and I have chronic fatigue syndrome too, and he allows his son of 26 to call me lazy!
His other son is moving from the U.K. to live in N.Y. at the end of November, he has his head full of ideas but doesn't have a job to go to yet. I also have a friend living in Scotia, N.Y.

Good luck with the knee replacement op - I am sure it will go well, I know several people who have had it done. I won't be surprised if I have to have mine done at some stage, I am 60 now and have had arthritis in both knees for several years.

Liz

hello,
I live in upstate NY. My doc tells me that fm has effected more women than men. There are 18 trigger points and I have 15. Sometimes just touching my skin hurts. I sometimes get burning in my lower back and right hip area. Lyrica helps with the burning.I also take a Carisoprodal for pain and spasms. Plus a few other Rx.
Athritis is an issue as well. This month I have to have a knee replacement. Not looking forward to that, that's for sure. When reading the post of other people, sounds like we are all pretty much in the same boat. Thanks for letting me know that I am not the only one who deals with fm. People look at you and see that your healthy outside. They have no idea what the inside is like. Good thing I have a patient husband. Take care and blessings to you all. If these are the golden years I want to know what's so golden about them. Ha Ha

talk about the kitchen sink
you got the better version, take you bed, lol

lol, julie before i had the pillow my neck would hurt all day and i wouldnt be able to turn my neck, now its ok i take that with me too lol.

lol ill have to get a pillow
they sell um in tesco now

i dread aving to give up work, i worry my boss will sack me,
as for being a granny, we have grandaughter over night on friday, shes a joy but it hurts to hold her in my arms i do suffer for taht one, she likes you to walk round with her when shes dosing off to sleep singing to her , but ive managed last few times to keep her sitting down on my lap,
mind you she loves her grampy too so that helps as her gets in from work its ' oh look honey grampy wants a cuddle of you'

and the support memoey pillar with the thick end under your neck, brilliant, i used the wrong end for a few nights lol, then read the instructions there about 20.00 but again work really well xx

sisie it has really helped there about 70.00 but well worth it
good luck have you tried any tablets yet pm if you want im up another 5 mins
julie anne im unable to work and would say for the last 12 months, even if i turned up i would be sacked for forgeting where i was lol, id need to sit down every 5 min, and who would make me a cuppa when i wake up all i want is it to have eased off so when im a granny i can have some quality time with any grand children xx

i got the foam matteress
its ok, but i find if i sleep on back my neck seems to feel like its clamped at the back in that position,
last night was my back
i keep thinkin i can cope without one dose of painkillers im that dumb i suffer next day

ooh thanks puss.
i will see about getting one of those at the weekend.
infact,i might reserve one online and just get hubby to pick it up lol
hes good like that!! lol

susie

it has got worse i have to admit
an that lst bad bout i did phone in sick,
it left me having trouble recaling certain stuff,
which has worried me a bit,

my eye sights not as good either
im ok in work, but get tired easier, i hate that at 43 years old, its depressing
OH has helped me more
i find im edgy too like i should be doing stuff but getting down with it all

susie have you got some of the foam matteress ive got 2 on from argos one is like a egg box without them i cant lie down it feels like im lying on concrete otherwise i take mine with me too when i sleep away

hi julieanne

i cant remember the last time i had a good nights sleep.
i feel as though i have to keep stretching my legs .
if i lie on my back for to long my hips get painful and if i lie on my side my legs get cramp all down the side.
im fed up with it,but hopefully when i get my appointment through for the musculoskeletal bloke at the hospital i can sort myself out lol

apart from that ive been told i might never work again!!!

oh happy days lol

susie

im surprised you manage work, the ruddy head pain is bad enough without the rest xxx

no only when head feels like its gonna burst, like a build up of pressure,
its like a tight band then round your head

does it hurt in your ear too like its gonna pop, wish it would lol.

thanks julieann ive heard its nasty and you need to chase hosp up my nan has this as well as fm and arthritus, and they have to check her eye sight because of this she is in her 80s now and been on steroids for years, i dont really know her but mum fills me in xx

just bin told by howie someone asked about pain in heads and if others suffered from pain near temples,

LL is was i think
when i was in hospital recently a blood test showed inflamed artery in temple this is comon in arthritis but can be treated with steroids ,
my boss asked me if i was given them but the hospital decided not to treat me with anything, suprise suprise,
anyway thought id let you all know in case you wana see your doc about it,
its called temparal arterialitis i think, and the vain can be seen pulsatiing in side of head,

i have had to issue a complaint today to hospital for lack of help and poor service in my treatment, hopfully they will now pull their finger out and find my notes

bad night sleep last night i say sleep, i lie i dont member sleepin much lmao,
tossed and turned up and down to bathroom, today my back and neck are aching

also that duloxetine LL is also called cymbalta, had a look in work, looks like it covers depression, hypertention,and few other things,inflamation
will make note for my GP

Thanks for this PussCat Am still taking the magnesium when I remember but think I should maybe be taking calcium with it altho article in magazine didn't say anything about it. I have been relatively pain free for a while, not 100% but bearable but wish I could sleep better. Since I got back from Wales have been feeling a bit fluey and am taking lemsips each night as I don't want to be ill when I go off to Malta.

Lizx

will add while i remember
instead of citalopram which is used for depression and fibromyalgia a new drug thought to be better acting on the FM and neuralgia is working very well, its called duloxatine i have mentioned it on another thread but cant find it but i said i would update the pain is much more manageable i take that aswell as tramodol 100mg every 4 hours morphine liquid when its very bad, i would certainly give the duloxatine a go, i always thought i wouldnt try something awaiting licence but glad i have its the 60mg dose put this on now as i know a few of you dont sleep much with the pain xxxx love to you xx

updated 15th sept,just adding this for liz
shes at the meet in llanelli this weekend but popped into holland an barrett the health shop
they do a magazine, inside this months is article on fibromyalgia, and some tips, one of which is taking magnesium, liz is trying this as we speak, and im sure will update us on effects, there are also some money saving vouchers i believe and the shop has discounted a lot of stock too,
i am out this afternoon with daughter and grandaughter so will pop in theere for a nosey round

take care all