General Chat

have had to start a new thread as i couldnt get my old one up and felt so many found it helpful last time so for all those sufferers feel free to add
and to all those i never replied to in the last 5 months hope your ok, and sorry for delay

Hi Julie Ann, as your last thread was so full, I started a new one in your absence and have nudged it up now so I could put Stella's communication re pain words on there. Hope you don't mind me starting a new thread then but there were so many new sufferers and sometimes we have all the threads up - so much info to take in. Liz

Hi Julie, long time no see, how are things? there are many more sufferers on the boards with FM, Liz has nudged up the threads so we can all be up to date on whats happening. Gillie XX

i didnt mind thanks girls for that it was getting full just renewed membership, things ave been busy yer, jessica (grandaughter) is gorgeous, i was at the birth, shes a happy little thing, lovely big blue eyes, fair hair, and a bit of a drama queen at 5 months, lmao, my FM has been pretty bad, had injections kenalog, but they didnt help a great deal, last time the doc didnt put as many in and was in agony, anyway gotta go see her end of august, saw her privately on my health insurance it were that bad but in mean time apptmt on nhs has comethru, 6months after last one, so im keeping it, got my doc to do me a script for diazepam for the headaches the other week they were so bad i was chocked up in work and the girls know im not like that put brave face on it normally , but it affected my eyes and down right side of face so that was a give away, eyes kept watering too today its ok though im on tramadol permanantly now, my doc doesnt believe tramacet (mix of tramadol and paracetamol, lower doses) are any good, anyways enough of me girls, hope yoru all well

updated 15th sept,just adding this for liz
shes at the meet in llanelli this weekend but popped into holland an barrett the health shop
they do a magazine, inside this months is article on fibromyalgia, and some tips, one of which is taking magnesium, liz is trying this as we speak, and im sure will update us on effects, there are also some money saving vouchers i believe and the shop has discounted a lot of stock too,
i am out this afternoon with daughter and grandaughter so will pop in theere for a nosey round

take care all

will add while i remember
instead of citalopram which is used for depression and fibromyalgia a new drug thought to be better acting on the FM and neuralgia is working very well, its called duloxatine i have mentioned it on another thread but cant find it but i said i would update the pain is much more manageable i take that aswell as tramodol 100mg every 4 hours morphine liquid when its very bad, i would certainly give the duloxatine a go, i always thought i wouldnt try something awaiting licence but glad i have its the 60mg dose put this on now as i know a few of you dont sleep much with the pain xxxx love to you xx

Thanks for this PussCat Am still taking the magnesium when I remember but think I should maybe be taking calcium with it altho article in magazine didn't say anything about it. I have been relatively pain free for a while, not 100% but bearable but wish I could sleep better. Since I got back from Wales have been feeling a bit fluey and am taking lemsips each night as I don't want to be ill when I go off to Malta.

Lizx

just bin told by howie someone asked about pain in heads and if others suffered from pain near temples,

LL is was i think
when i was in hospital recently a blood test showed inflamed artery in temple this is comon in arthritis but can be treated with steroids ,
my boss asked me if i was given them but the hospital decided not to treat me with anything, suprise suprise,
anyway thought id let you all know in case you wana see your doc about it,
its called temparal arterialitis i think, and the vain can be seen pulsatiing in side of head,

i have had to issue a complaint today to hospital for lack of help and poor service in my treatment, hopfully they will now pull their finger out and find my notes

bad night sleep last night i say sleep, i lie i dont member sleepin much lmao,
tossed and turned up and down to bathroom, today my back and neck are aching

also that duloxetine LL is also called cymbalta, had a look in work, looks like it covers depression, hypertention,and few other things,inflamation
will make note for my GP

thanks julieann ive heard its nasty and you need to chase hosp up my nan has this as well as fm and arthritus, and they have to check her eye sight because of this she is in her 80s now and been on steroids for years, i dont really know her but mum fills me in xx

does it hurt in your ear too like its gonna pop, wish it would lol.

no only when head feels like its gonna burst, like a build up of pressure,
its like a tight band then round your head

im surprised you manage work, the ruddy head pain is bad enough without the rest xxx

hi julieanne

i cant remember the last time i had a good nights sleep.
i feel as though i have to keep stretching my legs .
if i lie on my back for to long my hips get painful and if i lie on my side my legs get cramp all down the side.
im fed up with it,but hopefully when i get my appointment through for the musculoskeletal bloke at the hospital i can sort myself out lol

apart from that ive been told i might never work again!!!

oh happy days lol

susie

susie have you got some of the foam matteress ive got 2 on from argos one is like a egg box without them i cant lie down it feels like im lying on concrete otherwise i take mine with me too when i sleep away

it has got worse i have to admit
an that lst bad bout i did phone in sick,
it left me having trouble recaling certain stuff,
which has worried me a bit,

my eye sights not as good either
im ok in work, but get tired easier, i hate that at 43 years old, its depressing
OH has helped me more
i find im edgy too like i should be doing stuff but getting down with it all

ooh thanks puss.
i will see about getting one of those at the weekend.
infact,i might reserve one online and just get hubby to pick it up lol
hes good like that!! lol

susie

i got the foam matteress
its ok, but i find if i sleep on back my neck seems to feel like its clamped at the back in that position,
last night was my back
i keep thinkin i can cope without one dose of painkillers im that dumb i suffer next day

sisie it has really helped there about 70.00 but well worth it
good luck have you tried any tablets yet pm if you want im up another 5 mins
julie anne im unable to work and would say for the last 12 months, even if i turned up i would be sacked for forgeting where i was lol, id need to sit down every 5 min, and who would make me a cuppa when i wake up all i want is it to have eased off so when im a granny i can have some quality time with any grand children xx

and the support memoey pillar with the thick end under your neck, brilliant, i used the wrong end for a few nights lol, then read the instructions there about 20.00 but again work really well xx

lol ill have to get a pillow
they sell um in tesco now

i dread aving to give up work, i worry my boss will sack me,
as for being a granny, we have grandaughter over night on friday, shes a joy but it hurts to hold her in my arms i do suffer for taht one, she likes you to walk round with her when shes dosing off to sleep singing to her , but ive managed last few times to keep her sitting down on my lap,
mind you she loves her grampy too so that helps as her gets in from work its ' oh look honey grampy wants a cuddle of you'