General Chat

This week is M.E Awareness Week, with the main Awareness day being the 12th of May. (Florence Nightingales birthday, herself a sufferer of M.E) There are various Awareness and fundraising events planned throughout the U.K next week, Please support them if you can Many Thanks, Kathleen

My mum is currently waiting for a proper diagnosis of possible ME, at present they are saying she has PIFS, which we didnt realise was a sub category of ME. Were waiting for her to see some consultants, but the news of an awareness week is good, as i have to admit i knew nothing about it before, and still know very little now

Hi Samantha, sorry to hear about your Mum, have a look at www(.)afme(.)org(.)uk lots of info on there Kathleen

Good to see a thread on here about ME - thought I was the only one who had it! I haven't looked at the website for AME yet (must get round to it soon - been hectic here this week) but one of the patrons is Lord David Puttnam - him of Chariots of Fire and the Killing Field. I was priveleged to meet him last year at the school I work at, but last week he wrote an article in the Guardian 'owning up' to having ME since 1988. Good to see some high profile people coming forward, because so many people think it's in your mind. Would love to know more Kathleen - I don't belong to any support groups or anything - maybe you'd like to email me sometime? Mandy x

Kathleen Thanks for info on that site, I have had a quick look and it seems really informative!

Hi there Kathleen, Very interested to read about ME awareness week. I was diagnosed with Post Vital Fatigue Syndrome, and have felt really dreadful on and off for a year or two. This year being a bad time for me during February, March and April. I would be interested to know of a group regarding this, keep me posted about any groups.

Hi Maisie, whereabouts in wales are you? kathleen

Hi Mandy, will email you Samantha try www(.)colchester-mesh(.)org(.)uk/ its the local support group Kathleen

Kathleen Thanks for the local web address! :) On my way to look now!

Thanks for the info. I really do support the ME cause - I have seen what it did to a friend and though I have not had it myself, have in the past suffered a horrible post viral syndrome which dragged on for months and left me drained and exhausted at the slightest thing. Next week is also National Breastfeeding Awareness Week by the way. Must give it a plug as it is another worthy annual event. Angela

Hi Angela, thanks for the support.Yes its awful the state it leaves some people in.Hope your fully recovered from PVFS Thanks again Kathleen

I have a brother with ME, and am myself waiting for a referall to a rheumatologist for Fibromyalgia, a related condition. I'm told the difference between the two is that fatigue is the main symptom of ME, while muscular pain is the main symptom of FM. I don't suppose there's an FM support group anyone knows of? I'd love to hear from someone who's further down the treatment line than me!

Hi Sally, lots of different oppinions abot FM /ME/CFS. Its hard going trying to sift through it all you could trywww.fmnetnews(.)com or fmaware.org Good luck with your appointment Kathleen

Thank you Kathleen, I'll try those. While on the subject, I have an excellent book to recommend to anyone suffering with FM or related muscle pain. It compares FM, ME, etc and clarifies the differences. I actually started crying when I started reading it as it explained exactly how I've been feeling. It's by Leon Chaitow and is called 'Fibromyalgia and Muscle Pain', published by Thorsons. Thanks again.

Sally, Thank you for that info, will make a note of that book, its always handy to hear which books people find useful. I felt like that when I read Living with M.E by Dr Charles Shepherd,(himself a sufferer) it stopped me from cracking up when I read that, Take care Kathleen

Hi, Sally, Samantha, Mandy, Maise, Angela Check out www(.)bbc(.)co(.)uk/health/awareness Big feature on M.E Maisie, havent forgot, will mail you when I find address Mandy, thanks for your email, I will answer soon Kathleen

If anyone would like information about something which has helped many M.E sufferers including the two teenage daughters of friends of mine, please feel free to contact me. Marion

me

nudge

nudge