General Chat

know the feeling,my son goes off ok but wakes up several times a night and gets aggressive if i try and put him back to sleep... i dream about having 7 or 8 hours sleep,im exhausted

hi all i have two boys luke who is 11 and aaron who is 7 in dec and both have been diagnosed and statmented with asd and adhd plus other things witch differ with them luke i find menaltly tiering and aaron is phisicly tiering as aaron is very much always on the go and untile the last week or so he has been going to bed at 8 pm with the help of meds but getting up at 3 am every morning but resntly the doctors have given him more meds to help him sleep longer and i have just stared to get aproper nights sleep
sam

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nudge for Kirsten

Kirsten...This thread was nudged up for me when my Grandson was first diagnosed.

nudge for Carol

Good news - Edward came to stay recently - no longer wearing nappies! ... :-) - only 'pull-ups' on a long journey.

Thank you, Maz. I'll have a look at that site.

Hi Joy, have a look at this site - it gives lots of information and support for those with the condition. http://www(.)dyspraxiafoundation(.)org(.)uk/ I think every child is different - Jamie still has certain issues in the toiletting department at 9 - but it sounds like your niece could do with some help with it. Maz. XX

My niece's son has dyspraxia and is age 5. He is still in nappies. Not knowing a lot about dispraxia, I am wondering just what sort of age someone with that illness reaches before he stops having to wear nappies? Would anyone know?

Hi Stella, Won't either school help you? Have you actually met with the SENCOs and/or the Educational Psychologist? There are several things that I think you can do. You could try going through your health visitor and/or GP. You can contact your local Parent Partnership www(.)parentpartnership(.)org(.)uk. Or you can get in touch with your LEA. In the first instance I would write to the schools asking for a meeting with the SENCO. Keep a copy of your letter. Then at the meeting you can go through your concerns with them. Try and write notes before you go so that you don't forget anything. Best of luck and please let us know how you get on - lots of people here with experience of struggling against the system! Maz. XX

My 10 year Son has got 'Moderate Learning Difficulties' He has to go a special needs unit every morning and then onto mainstream school at dinnertime. I have asked for a Dyslexia test to be done and the Schools say they won't do this. Surely it is my right as a Parent that If I think he has Dyslexia to be tested for it? A school psycologist was quick enough to turn up and say yes he's got a problem, but they never turn up to any of the meetings or explain what it is that my Son has actually got....they just keep saying 'moderate learning difficulties' which to me could be anything. Bless him, it takes him a good half an hour just to read a simple book and needs so much help with homework ~ which he does get from me, I don't feel like the schools are doing enough for him to be honest. Stella X

another N for puss

n for puss to see Julia

Hi Jean :-) I hope he can now get the help he needs, so he doesn't have to struggle any more. Tinted overlays, tinted glasses etc should all be available. Tell your daughter to arrange a meeting with the SENCo (Special Educational Needs Co-ordinator) at the school, when she is better. Maz. XX

Thankyou Maz. My 7 year old grandson has just been confirmed dyslexic and although this is not in the same league as some of the children on this thread I have gained great comfort from reading the stories here. Jean x.

Hi Selina, nice to see you. I would say to keep notes of the things you notice, then ask for an appointment with the SENCo at the school and talk to her about them. You could also make an appointment with your Health Visitor. Do you have a date for the assessment yet? The Psychiatrist/Psychologist will want to talk to you as part of this, so it will be useful for you to have the information to hand. They will want to know about her history - from birth - and development and any past and present problems you have. Don't be embarassed about telling them things - they have heard it all and are great at talking to the kids about them. Even if you feel the problems are solved, make sure you tell about them as they may recur. Good luck :-)) Maz. XX

Hi Carol, my daughter has no physical disabilities as such but is very developed for a 10 year old, she has Autism, challenging behaviour and SLD, I learnt along time ago to ignore the stares when she's kicking off. Hi Selina, hope things are ok I havent spoke to you before but if i can be of any help let us know. hello to all special needs parents hope you are all well and remeber you are never alone Sharon

We have a condition called Fragile X Syndrome, in our family. Its a genetic condition, more common in boys than girls. We have 5 sufferers in our family. My brother has it quite bad, he wasn't diagnosed until he was 13, it was after that other members of the family were tested and diagnosed as either sufferers or carriers. Fragile X is as common as Downs Syndrome but still not many people have heard of it although it was first discovered in the 1970s, before my brother was born. He was hard work as a child, he would have violent outbursts, slow learning, behavoural problems and speech problems. My mother was once asked by a social worker if he was neglected because she noticed he was born 10 years after my sister they assumed he wasn't wanted. A teacher basically told my mum that his bad behaviour was down to bad parenting. This really upset my mum, I think my mum and dad were brilliant parents, firm but fair. If I see a child myself being extra naughty for his parents, I do not judge or criticize, as some might do, because the naughty, spoilt little brat who needs a good hiding, that I've heard people say numerous times, it may be they can't help it. My brother looks OK but mentally he isn't. Since he was diagnosed 15 years ago, we know how to handle him, and how to prevent him losing his temper and losing control over what might be nothing to someone who doesn't understand, e.g. we don't sing happy birthday to him, he hates the attention, if something doesn't go to plan he will lose his rag. When he was younger things at school improved as well because the teachers knew what to do to avoid him lashing out in temper, e.g. taking him to assembley first, instead of having to walk into a room full of people. He is not comfortable with crowds, although this has improved over the years. He has his humerous side, he makes everybody laugh and I mean laughing with him not at him. For all his problems, I wouldn't change him for the world. Not even for a day.

Hi Sharon :-)) we are doing ok thanks! Jamie is having weekly sessions at school to help with his behaviour (anger management and calming techniques) so hopefully that will help things! Maz. XX