General Chat

How many of us are aware of SADS Sudden Adult Death Syndrome - it kills at least 8 young people per week - the list of medication to avoid if a known sufferer is endless-I know my Son was or had actually taken two of the ones on the list - also inhalers are on the list - how come we were not made more aware of this-my GP is arranging for me and my family to be screened - but it is tragic that we had to lose Stephen to be given this chance-please look on the internet and read up on this and make others aware. Thank you - Jennifer.

I've never heard of it before, but will definitely look on the internet for details. It's obviously something that we need to be more aware of - thanks for posting this. Kaye x

Well said Jennifer...............I have to admit its so,ething I was never aware of.,..........till your posting. Thanks for that

I for one was not aware of it--thank you for drawing my attention to it...as I have young adults... I am so sorry for your lose,... Regards Sally...

Hi Jennifer, Yes I sadly experienced this happen to my friends eldest healthy 23 year old son 2 years ago in October,he was training to be a nurse although he wasnt on any medication,,,,,,,that was the PM report,,,,,,,,,, kay,

nudge Well done Jennifer xxx

n. for those who are unaware

Nudge Can others help keep this nudged please. Awareness needs to be raised, so does this thread! Thanks

To make you all aware that your children are precious

I am aware Jennifer, a friend of mine lost her boyfriends brother to it at 21, Carolx

Hi jennifer my sons mate mum died of this about aweek before her daughter was to start big school and she also left a daughter who has autism very sad. she went to bed and never woke up so very sad people really need to be aware Rosex

I lost my brother last year and my Son this year, now we are all going for screening - people need to be aware of this situation - in the UK 8 a week - that is a lot of heartache - we need to read and learn.

My very good friend died from this leaving behind a husband a two young children. She was talking to her sister on the phone one afternoon when she just collapsed and died at the age of 32. Her 28 year old brother died from it 3 years previous.

n - to remind you

Jennifer, I am so very sorry for your loss. I have never heard of Sads, but will be looking into it. Prayers and positive thoughts on the way to you. Lindy xx

jennifer first all so sorry for your sad loss, i didnt know anthing about this either,i have been to the site and read about what it does, as i have alot of grandchildren who are young adults,so thank your for drawing mine and other people attentsion as most of us knew nothing about sads lol joycex

Hi Jennifer,3 years ago i knew 3 people within weeks died of this,one was a young boy of 17 and a only child.Very sad.Its also not a new thing as back in the late 60's a boy in my class lost his youngest brother from this as well.Glad you have a result though.Hope all the screening goes well for the rest of you and please let us all know. Annie x

If 8 young adults are dying from this every week, that means 32 a month, which in turn is 384 a year - and very little is known about it - until it strikes home - 384 lost lifes - but the number of people left affected by this is far more, all the family and friends that are left without their loved one's and all the heartache that follows. More people need to be aware of this and more money needs to be awarded to research so we can stop this dreadfull thing happening. Please help me make people aware of this and hopefully something can be done. I am going to look into ways of improving awareness and I will keep you posted. Thank you Jennifer.

Hi Jennifer I'm so sorry for your loss - how incredibly brave of you to want to raise awareness. I knew a child at the school where I work, that died of SADS, but previously had never heard of it. Sharon xx

It is so sad. Just heard on Thursday that a co-workers son (age 14) died of it on Tuesday. Mum went to wake him for first day back to school after summer holis and found he had died in his sleep. So tragic. God Bless those who have to go through with a tragidy like this.