General Chat

all children are a blessing xxx

Bless your grandson Annie,
My sister is diabetic and was recently rushed into hospital as she was not well as she has another condition which can kill her,she has to watch what she eats and drinks as well.

Lisa xx

(((((((((((((((((((( Hugs )))))))))))))))))))))

Wishing all of you a very very Merry Christmas.

Thinking of you all.

Gaynor xxx

((((hugs))))
for everyone who has posted on my thread.
You are all fantastic people, as are your children/Grandchildren.
I think it is good been able to talk to people with special relatives.
My OH and I where never given any help when Kieran was born we was just told to go home and get on with raising him.
We have had to fight a lot to get help with Kieran who has a slight heart murmur, asthma, recurring chest infections and he has had pnumonia a few times as well.
We nearly lost him once as he was sent home from hospital and he still had pnumonia on his lungs.
I had asked them to check to see if the pnumonia had gone before he was sent home but they refused to.
I was once phoned up so that I could rush back up to the hospital to sign a consent form so Kieran could be taken to theatre to have a TPN line put into his groin which they then had to remove as it became blocked.
He also had to have a blood transfusion.

Lisa xx

I have 'had' many special children over the years as the Senco for the Pre-school. I would love to have been able to follow some of them through life to see how they did.

I do meet parents at times who give me updates which is great and has so far been very positive with many children going on to achieve higher than they were given credit for when their futures were being talked about.

I know things have come on a long way over the years and have improved quite drastically from even 2 years ago. I get more support in my setting and all the hard work and assessments that the children and ourselves do, is now carried forward and used rather than schools starting again with their own systems and assessments which can often delay help, support and statements.

So well done to all the parents and children who need that little extra support, for fighting for what is out there and should be available easily.

But of course all children are special. Some just need a little more help, love and understanding to get them through life :-)

Jacky

I guess I have four special children (young adults) who I work with. Yes they each have their own problems and are sometimes hard to cope with, and I know people say at the end of the shift you can walk away, but it is not like that. When I am not on shift I still worry and care about them. But the best bit about this job, is the reward you feel in your heart when you see them smile, or laugh, because you have given them a little something of normaility. A simple little gesture means so much to them. My family even get involved in a funny way, as R loves my hubby and thinks my Derek is the best, just cos he makes her cd's. They love to call around mine for a coffee and a chat. I think you all do a fabulous job and deserve a great big cheer. May you keep up your good work.

and a massive cheer for you too Gillian Jennifer - you so deserve it

Bless the people you work with Gillian.
And bless you as well for doing what you do.

Lisa xx

My beautiful nephew Allan is high functioning autistic. He's 9 years old and goes to a main-stream school which has a special education class.

Allan isn't very vocal so signs most of the time. He gets frustrated when someone doesn't understand sign language. He can be quite aggressive when this happens.

He is regimentally repedative in his daily habits. He will only eat off a particular plate and he won't eat a meal if it's been put on his plate for him. He has to put it on himself.

He has a collection of things.............marble, ball point pen, plastic spider etc.....that must be in the right position on his study desk.

He counts the road guard rails whenever he's travelling in the car and doesn't like anyone talking while he's counting.

Allan is very loving and give the best hugs ever, but he has to give them. He freezes up and starts screaming if someone gives him a hug.

He loves Beyonce, Brittany Spears and Gwyn Steffani.

He's brilliant at maths.

He lives in his own little world.

Bless him.





Deb:)

Bless your nephew Allan.
My son Kieran used to go to mainstream school but his one to one worker took loads of time of school as her family where telling her that she was spending more time with Kieran then she was with her own children even though her children where at school when she was at work.
I also witnessed her been quite nasty with Kieran when he didn't want to stand up and walk with her support.
She did get the sack in the end but that meant Kieran could only go to school if there was someone who could be with Kieran.
We ended up taking Kieran out of mainstream school and he now goes to a fantastic school and he is coming on in leaps and bounds now.
Kieran gets really angry when he does signing to people if they don't understand him.

Lisa xx

I really must take my hat off to you Lisa. You must be very special yourself to cope full-time. Kieran is so lucky to have such a devoted mum like you.

As much as I love Allan, I can only deal with him for small periods of time. He is extremely draining when he's here with me and OH.

Allan wants to count the pebbles around the pool whenever he's here. He will be out there for hours if we let him. he won't let me move him and if I try to put sunblock or a hat on him, he screams. My OH usually has to pysically pick him up and carry him indoors.

His favourite card game at the moment is cannasta. It's impossible to beat him as he counts the cards that come out and knows what's left in the deck.....................lol

I'm worried about the other children in the school making fun of him. Allan is totally without shame or modesty. He decided that he didn't want to wear his uniform anymore and stripped naked. He then went back across the school to his classroom.

I really do look forward to his visits, but I have to be honest and say that I fall exhausted into my armchair when he leaves.

I love him heaps. He's my special little man.




Deb:)

I feel for all of you mothers with Children that has difficulties through life God Bless you all and hope things improve for you.

My story does have a happy ending
My Grandson Lochie when he was 2 years old had a illness called Gulliain- Barr Syndrome. Guillain-Barre syndrome is a very rare serious disorder that occurs when the body's defense (immune) system mistakenly attacks part of the nervous system. This leads to nerve inflammation that causes muscle weakness, which continues to get worse. Only 2 in 100.000 people get this disease.
He was virtually like a rag doll and couldn't sit up. After taking him to the doctors 4 or 5 times and being told it was a virus I told my son to take him to Emergency at the Hospital. It took 4 days for them to diagnose what was wrong with him. He was in Intensive Care for 2 weeks and then it was a matter of months of Physio and tender loving care to get his limbs moving again. He didn't sit up for 2 months.
Some people never recover properly. My Son and his wife worked extemely hard with him to try and get him back to the little boy he is today. He is now 6 years old and is a very determined little boy. He goes to Kung Fu, Swimming, and this year was his first year at School. It was the worst year of our lives but thank God and all the hard work of the Doctors, Nurses and My son and his wife he is now a lovely well little boy. He still has to have a yearly examination but he is Fine.


Lochie's sister Keesha who is 8 years old is allergic to Nuts, some exotic fruits, and lotions and has to have a Epi Pen wherever she goes. Luckily she has never had to use it when she has been with me and I am very aware of what she can and can't have.

Regards One Greatful Granddma
Jackie West Aussie

p.s from my previous post
Lisa this is such a lovely thread and I hope that it has helped you to chat with other people whos children have problems.
You are all special people.

Merry Christmas and A Happy New year to you all
Jackie West Aussie

Thankyou very much Deb.
I won't say looking after Kieran is easy as it isn't has he needs everything doing for him as the only thing that he can do for himself is to feed himself.
I have to get him up in a morning bath him, dry him and dress him.
And bless him he still wears nappies as well.
I won't deny the fact that I love the time when Kieran is at school and when he goes to bed.
And I am sorry if by saying that if I sound nasty but I am just been honest.
I have to do physio with Kieran everyday to.
I am really pleased that your story about your grandson had a happy ending Jackie.
((((hugs)))) for you and your children hoobity.
They both sound lovely children.
And I totally agree with you, they are all very special.

Lisa xx

Yes it is great to get to talk to other people about Kieran as I never have anyone else to talk to.
I am really pleased that I did this thread now.
You are all fantastic people.

Lisa xx

I am adding this For Billys Mum, Julie, I think she is right to be proud of her Daughter for doing this:

http://video.aol.com/video-detail/special-billy/287625233

I will have a look now Carol.

Lisa xx

Ive just had a look at the video thankyou for adding the link Carol.

Julie is right to be proud of her daughter and Billy she has 2 wonderful children that through her actions have learnt the real meaning of love, understanding and compassion even though they go through such hard times. The video really moved me.

((((((((((((((hugs to the whole family))))))))))))

Jax xx

I have just had a look at the video.
Julies children are very special and it was a lovely thing julies daughter has done.

Lisa xx

what a good compassionate thread Lisa and I am sure it is a help for parents of these special children to be able to chat to each other. you should keep it going like the fibromyalgia thread.

I think you Mums with special children are special Mums (and dads of course). Back in the 70s I used to help at a respite home for special children, some with Downs, some with other physical or mental handicaps. These were usually teenagers. One night I 'baby sat' while the people in charge went out. Just me and about 6 of the children, one of whom was in a wheel chair. They were all in bed but they were young devils and always up to mischief. i was glad when the owners came home! it was very hard work.

these days I am a trustee for gloucestershire Lifestyles a charity that works with disabled adults. I think I have said before that both the chairman and the secretary have CF, both lovely people (both male) both determined to live as normal a life as the rest of humanity will let them.

Anyway, give all your special children a gentle hug from me and have a big ((((hug)))) yourselves.

Ann
Glos