General Chat

Val, it sounds to me as if he needs a change in his statement if the support is not working - maybe he needs someone with him full time. When was the statement last reviewed? You should attend a review meeting yearly with the SENCO and his class teacher and LSA. Maybe he needs a new assessment, which would recommend that he receives more help. It is, as you say, really important to get this sorted out now in preparation for him going to secondary school. Maz. XX

I am getting the hours the statement said it is, they will have to check before he goes to high school so he gets help there as they have to transfer it over so it remains in place he has 3 days help at the moment but they don't know how the change will affect him as he will be moving from class to class with different teachers all the time

Hi Val, your sons statement should have written in it what your son should be recieving in school, the school are bound to give your son exactly what it documented in his statement, if you know this is not the case then you must query it, go to the CAF link I mentioned earlier and phone them to ask there advice, they will tell you exactly what to put in a letter Contact a Family, 209-211 City Road, London EC1V 1JN Tel: 020 7608 8700 Fax: 020 7608 8701 Helpline 0808 808 3555 or Textphone 0808 808 3556 Freephone for parents and families (10am-4pm, Mon-Fri) Good luck, get back to us and let us know how it goes.

Sarah If you put it in to a search engine you would be able to get information on it very handy in deed

hi maz my nephew is autistic. i have to admit that i don't know a lot about it. my eldest 2 get on brilliantly with him tho

I would get on to his hospital doctor and get them to do something

My son is statmented and he gets a helper 3 full days a week and twice a year they look at the statment to see how things are going and they will be checking before he goes to high school so they get help for him there to and the school gets extra money towards the helper so if you are not getting the help get on to the school and the education board as I get a letter out lining what help he gets

Hello DC - you are more than welcome on this thread! The statement is basically to say what support your child should receive over and above that provided to 'normal' mainstream kids. It also ensures that the school receives funds to cover this support. If the statement is not being adhered to, then you should first of all WRITE to the head teacher querying this. If you get no satisfactory response then write to your LEA. I say write, so that there is a clear record of your question - also you must ask them to confirm anything that they say 'in writing'. Have a look at the website that Penny (Ken) has quoted below too. Good luck and feel free to post here as often as you like! Maz. XX

Thanks for that Ken and if any kids have Metabolic problems CLIMB is a very good site as well

I m Penny but using my partner s access to the site because its him thats the member of GR. CAF is a very good Org, I ve used them myself, they even advice you how to write letters etc, they will even send you sample ones to keep to give you an idea on how to write them.

thanks for that addy Ken I have added it to my fav list Julia

http://www.cafamily.org.uk/index.html This is a great site for parents carers of Autistic,ADHD,special needs children, offers advice,links,info etc from anything from education,benefits,DLA,rare illnesses etc,really worth keeping in your favourites.

Hi, my son is 12 and has Aspergers/SEN and a few other problems that go hand in hand with Autism. I am happy to share any of my experiences and advice,I ve been there and got the T shirt. Can I also add I am a big believer in letter writing, no good making phonecalls when you have a problem with your child, always write a letter and keep a copy for yourself(easy to do on the computer) not only will your letter go on file but it should get a reply. Anyway happy to help, you can contact me either on here or by emailing me. Penny in Dorset

another nudge for Sylvia!!

Maz, thanks for starting this thread, we have one autistic boy and one ADHD boy in our children's generation. Not mine but I still have trouble keeping up with my own they move so fast! Thanks for the list of website. My brother and sister in law will find them really useful Abigail

There is a book that I have recommended to various people that was written by a lady I know. She works with SEN parents and has 2 SEN children herself. Please ask your local library to get this book in for you - it will give you coping strategies and contacts, whatever your child's SEN. Also, if you are interested in setting up a support group or similar, it gives advice on that too. The book is called Moving On (Supporting Parents of Children with SEN) by Alison Orphan. Published by David Fulton Publishers. ISBN 1-84312-113-1 £20.00. Alison ran a parenting class at our school and subsequently a SEN parents group. Some of our experiences and quotes were used in the book. I can thoroughly recommend this to everyone. Maz. XX

Thats ok take care Cherry

Hi Cherry Yes my hubby does help, infact he is a gem......at the time this happened he wasn't here he a gone out for a while. I am fortunate to have his help at the moment but when he goes back to work things will be different and I will be dealing with it all on my own again. Things are so hard at the moment I wonder how I cope, if I cope at all. I have to go to work soon so will say goodbye and thanks for listening. Nicola xx

Nicola are you ok, your not babbling, i can only imagine that writing your feelings down will help a little. Hope you dont mind me asking where is your hubby could he help out. Even though my two boys dont have any problems like your child but my one son does get himself at times in situation flipping for no reason more often physically but i,m usually the one that deals with it not hubby. Please take care of yourself. Cherry

I am so stressed I could scream. I am worn to a frazel and I can't go on like this any more. I can't cope with it, my husband has lost his job on xmas eve and that has stuck one more knife in the wound. Now it is only me that is working and he can't get a job because the time of the year. Then I have my son in my face and won't do as he is told, he at the moment is sat on the stairs, I know he's there because he is shouting and screaming at me. He won't listen to what anyone has to say and he just wants to do what he wants to do. He always starts off ok and then just flips over the slightest little thing. It is doing my head in, I can't sleep from the worry, I am pretty clued up on what to do but nothing works. Now he is stomping on the stairs as loud as he can, I just want to run away and not come back. I have to go to work in an hour's time and I have got myself in a right state. Sorry for babbling, cause I'm sure that's what I am doing. Nicola xx