General Chat

hi val thanks for the welcome. dotty

hi maz nice to talk to you thanks for welcoming me onto the board. i love the threads especially the poems. am mostly on the board about this time. you are right we have been through the mill a bit when the kids were younger, that's when you can't see a way out but honestly things do get better. hope to talk to you again soon. dottyxx

I am fine Kaye but David was in hospital with a liver infection

that is terrible but keep pushing and it will come, I do know how you feel took them till my eldest boy was 15yrs and 6mnth for them to tell me his reading and writing was for a 10yr old got information day of his last exam I had been trying for 4yrs

Hi Dotty welcome to the boards and Kaye keep pushing and you will get the help when she starts school as quite a few on this board have had to do

Hi Dotty, nice to meet you too! You certainly have been through the mill. So glad your sons are getting the help and support they need now. It is wearing enough with just one little one with a few problems, you must have been absolutely drained when yours were younger. I know what you mean about other people - these 'invisible' disabilities are so difficult in public. I heard once of a family who put their child in a t-shirt reading 'I'm not naughty - I'm autistic' to deal with other people's stares and judgement. I think you have to develop a very thick skin and just concentrate on handling the situation in the way you know works - sod everyone else - they know nothing about it! Hope to see you about on the boards soon. Maz. XX

HI MY NAME IS DOTTY DOT I HAVE TWO SONS WITH SPECIAL NEEDS THE YOUNGEST ONE IS 23 AND IS ALSO SEVERELY MENTALLY HANDICAPPED, HE HAS NO SPEECH SO COMMUNICATES BY SHOUTING AND SCREAMING,WE HAD A HARD TIME GETTING HIM DIAGNOSED WITH AUTISM AS THEY WOULDN'T RECOGNISE IT IN SHEFFIELD. WE FOUND IT REALLY HARD WORK WHEN HE WAS YOUNGER, BUT NOW HE IS IN A HOME FOR AUTISTIC YOUNG PEOPLE VERY NEAR TO US AND HE HAS COME ON IN LEAPS AND BOUNDS HE HAS 1TO1 AND IS GETTING BETTER EVERY DAY.OUR OTHER SON HAS ASPERGERS SYNDROME AND LIVES IN A HOUSE WITH 24 HOUR STAFFING, HE WAS ONLY DIAGNOSED LAST YEAR WHEN HE WAS 24. HE HAS MENTAL HEALTH PROBLEMS AS WELL, BOTH OF THEM SELF HARM. WE HAVE THEM BOTH HOME REGULARLY AND TAKE THEM OUT FOR THE DAY TO DIFFERENT PLACES THAT IS WHERE IT IS VERY HARD (NOT TAKING THEM OUT ) BUT THE UNKIND COMMENTS AND STARES FROM PEOPLE WHO JUST DON'T UNDERSTAND, IT DOESN'T BOTHER THEM BUT IT UPSETS US, WE ARE THEIR PARENTS AND ONLY WANT TO PROTECT THEM. BUT THERE IS A LIGHT AT THE END OF THE TUNNEL AND THINGS DO GET BETTER EVENTUALLY. DOTTY (NEW MEMBER)

Kaye, my son was the same in nursery - he only had a handful of words and phrases - I had to do a phonetic crib sheet for the teacher! If they don't do an immediate referral to a speech therapist, then get your GP and/or Health Visitor involved and they will arrange the referral for you. Off to bed now :-)) speak soon!! Maz. XX

Hi Kaye - sorry if I forgot speaking to you before - names are my worst thing lol!! Just keep strong and keep them on their toes. Make sure that the class teacher is aware of the situation - ask in the first couple of days if you could have 5 minutes of their time after school. If they are aware of the situation, then she should be on what is called 'school action' - a register of those children who need special 'help' but don't have a statement. The school should draw up an IEP (Individual Education Plan) for your daughter to set out some targets for her first term. I too am very nervous about this school year - have heard some 'things' about the teacher and also it will be harder for him this year - juniors has a bit of a different focus to infants. Good luck!! Maz. XX

Hi Kaye, nice to meet you! Have you explained everything to the teachers yet? If not then please speak to the Head and the classteacher. They should put you onto the SENCO (the special needs co-ordinator for the school) and between you all an agreement should be made on the best course of action for your daughter. You don't say if she already has a diagnosis - if so then they should be able to organise a Statement of Special Educational Needs relatively quickly. If she has not been diagnosed yet, then the school should be able to bring in professionals (educational psychologist/speech therapist etc) to begin assessing her, and then they can put her forward for a Statement. If you don't know, a Statement sets out the provision that she will be allowed for the next year - i.e. one to one help in the classroom, speech and/or physical therapy etc. Any help or advice you need - someone on here will have been there before and be more than willing to help!! Main thing I would say is that you know your child best - you need to put her needs first and be heard! Best of luck, call on us anytime please!! Maz. XX

well we will try won't we but if you need to talk Maz or anyone else give me a shout and I will listien ok

You have certainly got a lot on your plate Val!! Fingers crossed for all of us for the new school year eh?!!! Maz. XX

John starts High school on the 7th September I was dreading it but the high school offered his helper a full time job to be on hand when he kicks of. Damien's doctor is getting the school nurse to talk to the school about the problems he is going to have as just before they broke up he fell down concrete stairs and hurt his leg and know one told me except my son. David kept getting pains turned out he had a liver infection so we will need to keep an eye on him

Thanks Val I will! Bit worried about how he will fare with his new teacher as I have heard some unsettling things about her! How is your boy now please?? Maz. XX

Maz have word with the school even if they don't let him in with it they can keep an eye on him and his behaviour

Jamie has been really struggling with his anger over the last couple of weeks. May be something to do with his dad being away so much I suppose. He is taking it out on his sister - scratching and punching her. So difficult to deal with it. Today I went out a bought a stretch Homer Simpson - same as the old Stretch Armstrong toy - so that if he gets angry, he can take it out on that instead of on her. Worried that this may be a continuing thing after he goes back to school - not sure if they will let him take it in with him or not! Maz. XX

I know how you feel

yes it is all the doctor said was they found an abnormal thing in it will check it again tomorrow

Yes he went in yesterday and everything is clear except his blood they found something in his blood

Anne I have 2 boys with ADHD my eldest has a metabolic disease as well my youngest boy has dyspraxia but my eldest child is fine but she is a girl it seemed to affect boys