General Chat

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Well, the old saying always was “no news is good news” – but I have news – the worst really that it could have possibly been. Do I try and make this short – or go the whole lot?? Right – whole lot :-)))))))) Been back from the hospital nearly an hour – have managed to speak to family that are on this site – so hence the typing. Got there at 11.30 too – been a long day. Even before they took the needle out of my arm (for the dye for the scan – and painless by the way) – they came and told me that they had a message from Jeanette (my oncologist) and that could I wait and see her – she would be about an hour. Well, I just knew then that it was bad news. I reckon she must have said to the scanning people “If you find anything ring me”. Well she was only 10 mins late – and as soon as Rob and I were taken into a side room I said to her “It’s bad news isn’t it? * with big gawpy smile on my face *. She said “Gaynor, I’m so sorry it is”. We then spoke about pain relief and the options available. Of course, because the Dexamethasone (steroids) stop me sleeping – I can’t take them indefinitely and the headache pain will come back. Then the next option is strong pain killers which will finally put me to a sleepy coma – and that’s it. Course, Mrs “Always look on the bright side here” says – well better for me to go like that than potentially cough my lungs up (another big grin on face). Jeanette said “God, you are amazing.” The good interim news is that the Dexemethasone has been successful in reducing the inflammation and swelling which causes the intracranial pressure and intense headaches. So, to try and keep that momentum going, I have had two rather strong bouts of radiation to my brain today and go back for the last lot tomorrow. The negative of that – in 6 weeks my hair will drop out – call me baldy (Susie, I always knew that I would NEED that hat I bought in Weymouth lol). Of course – I had to ask about a new prognosis – and Jeanette knows she can’t fob me off. Look I said, lets make it easier – will I see my next birthday – when is it she said – March 9th I said (got lunch booked at Houses of Parliament – another thread at sometime). All she said was “We’ll try – we should be able to but am not going to guarantee it.” My intuition at the moment hasn’t quite defined that – it will. Pink – sorry hun – always told you I wouldn’t be at the end of the wall for you – but I know you understand. Rob and the kids are pretty damned devastated to say the least – me? I’m just me – my normal upbeat self who is totally calm and relaxed, almost a feeling of relief passing through my brain and body. Perhaps I really am warped after all. Shame that I couldn’t have made this a better, nicer posting – but I will see so many of you on 12th – and without doubt for the last time – and for sure that will be bloody tough on the emotions for a lot of us – especially Rob and Jack who are coming. So, until 12th – take care all – and remember – these things happen to a few of us – it’s rare – but hey, that’s life and death. Much love, thanks and warmth to you all. Love and hugs Gaynor xxxxx Another “Angel with very broken wings” P.S. Sorry that this has been a bit long.

Gaynor, I cant make the 12th but I will be thinking of you every step of the way, you are one of the bravest ladies I know. Lots of love to you and your family Jo xx

Gaynor I'm so sorry much love to you and your family. Julia

Sorry you have had to go through this, you are such a brave lady, and we will always be here if you feel you need us, and we will also be here for your family if they need us. XXXX Bev

So sorry, Gaynor. Hugs to you and your family. Gwynne

as a fairly newbie i feel like im intruding but i felt i had to reply. i have always been scared of death to be honest but i had an aura reading the other day and my grandparents made a connection, i am no longer afraid. i dont think i could say anything worthy right now but i just wanted you to know that, well you know. best of luck with everything. alison xxx

Gaynor I am so terribly sorry to hear this news. I don't think I've ever come across a more positive person than you and I shall look forward to meeting you on the 12th. Love to you and all your family. Sue

oh gaynor i am sooo sorry heres me blubbing and you and you still have that chirpy way about you,lol by the way hun,the hat suits you love and kisses terry and susie xxxxxxxxxxxxxxxx

just about to go when i saw this. i wish i knew what to say but i dont, i just want to send you all my love and all my love to the family. xxxxx

gaynor what a very brave girl are you. he did indeed break the mold when he made you. my heart goes out to you and your family xxx

Gaynor What can i say ,you are one heck of a brave lady . Love to Rob and the children. ((((((((((((((BIG HUG))))))))))))))))0))) XXXXXXXXXXXXXXXXXXXXXXXXXXX Val

Effy Wot can I say ? Much love & healing hugs Mildred x

I'm really sorry to hear that Gaynor You are one trully remarkable lady and my thoughts are with you and your family. Love Nicola xxxxx

Don't know what to say ......just that you are in my thoughts and prayers. Viv

Gaynor, I am so sorry to hear your news. I am going to the meet on 12th and I am looking forward to seeing you there when I can then quite truthfully say I have been privileged to meet one of the bravest people ever. Many hugs to you and your family., Jean x.

What to say in such an awful situation? I don't know. I'm thinking of you and sending you all my love becx

xx

143 mum. Can't wait to give you a real hug tomorrow. Jack xxxxxxxxxxxxxxxxxx

Love and hugs to someone I don't know, have never met but really admire xx