General Chat

Good luck Linda, with your appointment. Liz

I often get worried when any problems I have get put down to the fibromyalgia, doc nevers seems concerned about the weight I have put on, I had to ask for my blood pressure to be taken last time I was in surgery, as it is never checked, think I might change doctors.

Hi. I too started off with an overactive thyroid and Ihad surgery and they have taken half away but the problem know I have under active,as it shrunk and I have to take 120 mg tablets a day I weighed before all this 9stone and I know weigh twelve and half I constantly battle with my weight I had my surgery 40yrs ago and I only get a blood check once a year.The perscription are free. If i complain to the doctor aboat being over weight she passes it off as my age. Fiddle stick's I do plenty of walking and exersise.I will defintly get the book everone is talking aboat thanks for all the comment's I dont feel so alone with this problem

Hi Everyone Just thought I would put in my two pennyworth about Thyroid Problems. I have had an underactive Thyroid for 3 years now and it took 3 doctors to find a decent level of Thyroxine for me. I have regular blood tests about every 6 weeks now to make sure it is ok. I am on 100mg of Thyroxine Monday to Friday and 50mg on Saturday and Sunday. My level now seems to be OK for the time being. I get achy joints and have trouble sleeping I also get very tired easy and I feel the Heat something chronic. Living in Australia doesn't help as it get's pretty hot here. I have also got Bursitis in my left hip area and I was told by the Physio that it could be caused with Thyroid problems it seems the Thyroid Gland controls most of your body. My friend that lives over the other side of Australia recently sent me an email regarding her Thyroid problem. It seems she has been to a specialist recently this was what he said and I quote: (((((The condition you have is called Hypothyroidism and causes heat sensitivity and perspiring more than normal. difficulty tolerating hot weather, fatigue weakness to upper arms and thighs. My advice to you is to try the RADIOIODINE ABLATION tablet which kills the Thyroid. After that you would need to have a Hormone replacement tablet daily for the rest of your life.))))) She also said that you had to stay away from small children for a week after taking this tablet. I have never heard of it personally but I am going to ask my Gp about it next time I go to see him. Has anyone else heard of it??? KInd Regards Jackie

This thread is nearly a year old !!!!!!!!!!!!!!!! Well I finally have my hospital appointment to see the endocrynologist( Dr who knows about glands?) It is 1st March. I'll let you know how I get on. Still can't loose the weight Lowered dose of thyroxine to combat the alopecia? Joints really aching Stiffness every morning. Can't sleep at night, but can drop off mid-day or early evening if I let myself. Maybe I should make a list and take it with me when I see the consultant Hope others are feeling better at present Linda :o)

I am undergoing test to see whether i have a underactive thyroid gland. I have periods where i feel so tired, cant even get out of the bed until 10, i can feel like this for days. This has been going on for several months, i get bouts of real tiredness, in between this is still feel tired just not as bad. went to doctors on monday as i couldnt get up with the kids, told her how i was feeling, she said that she would test for underactive thyroid. She did not give to much info only said it could explain the tiredness, gainin weight, i have been trying to eat healthy to loose weight, but no diets seem to work. Doctor signed me off work this week, get results tomorrow. how reliable is the blood test, as i;m sure it will come back negative, as the doctor usually shrugs it off with general tiredness, the only way i can describe; it is as if i am walking in snow/mud with wellingtons on, every step seems to ache all over.

nudge

Hi All Had a blood test a couple of weeks ago now, and as hadn't heard otherwise assumed I was to carry on a taking 50mcg of thyroxine, (my doctor's normally very good, at phoning up if i need to make appointment if my blood tests show anything different). I had to put a repeat prescription in - which I picked up yesterday, good job i looked close My thyroxine dose has been increased to 100mcg a day now. No wonder I was still feeling tired. No energy and my get up and go non exixtant. Joints still ache etc etc My blood test must have shown levels still low. At least my diabetic tables etc have not changed. Regards Liz

Hi All, Just got my blood test results back and my thyroid is playing games with me yet again. Had to have my thyroxine upped ~now on 300mcg. Back for blood test next month to check levels. My eyes also have been uncomforable so i have been given drops to put in them....Doctor said it is due to the central heating being on...does any one else have this prob. I also had other tests done~ and the results are not so good. Take Care All. R.B.xxx

Hi everyone Update Multi blood tests done last week Results today: Lipids fine Diabetes = borderline to be controlled by diet (great as I still can't loose any weight) Thyroid = a drop in my levels as predicted, retest in 2 months I now have extremely painful joints and difficulty with mobility especially in the mornings, getting dressed is a juggling act and takes ages until I have loosened up. I now have another Dr appointment next Friday to see if I need blood tests to check for rheumatoid arthritus? I am wondering if all these issues point to a viral debilitation like fibromyalgia? Hope everyone else reading this is coping at present. Regards Linda :o)

Hi Raymond/Linda Never heard of thyroideye either. Learn something new every day. Hope your eyes have stablised now Raymond. Agree with Linda, if we can keep adding, will become a good reference - regards Liz

Hi Raymond Sorry to hear of your problems with your eye. No I had never heard of it before I know that people with an overactive thyroid have protruding eyes, Marty Feldman the actor was a sufferer And I do know that treatment for overactive thyroid often results in an underactive thyroid I feel that not enough is known about our glandular system and some treatments are very hit and miss. Drs don't always listen to what we say either Keep adding folks it will become reference for others Linda :o)

I have had thryroid problems for eight years, I have been looking through all the threads but can't find anyone saying they have had thryroid eye. I have this and it is a particularly nasty one. First i was given Carbamazola it didn't work, then given Radio Active Iodine went under active. Then I started with double vision and eyeballs felt they were being pushed out of my head, too much pressure my anti immune system was attacking my eye sight. Put in to hospital and given what they called industrial size fusion of Steroids for four days, then Radio therapy sessions for 6 days, then had my right eye lense replaced because my right eye had started to cloud over, I now have a prism in my right spectacle lense to stop me having double vision, but at least I still have my eye sight. DONT get me wrong I am not WHINGING. But if you do think you have something wrong with your eye's see a consultant, I am just grateful they saved my sight, THRYROIDISM is not to be taken lightly.

Hi Liz Hopefully once your thyroid levels have been checked again after your next blood test it will be decided if you need to increase the amount of thyroxine you take. This is usually done slowly initially as too much can have side effects like palpitations........... not very pleasant. I was diagnosed over 17 years ago. But have not had a change in dosage for many years, until now and the lowering of dosage, which my doctor was actually as surprised as me about !!!!!!!!!!!! Hope you pick up a bit once the Christmas prearations are complete and above all try to enjoy yourself. Yes we do tend to think everything is down to..............age, weather and other factors. Regards Linda

Hi Linda - know what you mean about back pedalling and the dry hair, also getting dry skin round cheeks now. Weight - mm no comment there.Still so very tired. Am still on low dose thyroxine - have to get blood test after new year - the first one since i've been on thyroxine. A lot of the symptoms - could, I suppose, be generalised, to overwork, lack of sleep etc. But it does not help when you feel your get up and go has pemanantley(sp?) got up and gone - and you can not seem to find it or get it back Wish sometimes that doctors would listen to how people feel, without the fobbing off Liz

Hi Googled and found this info, I too have an underactive thyroide and have never got back to my previous weight!! Hypothyroidism - Underactive Thyroid Hypothyroidism, or underactive thyroid, is 10 times more common in women than men. Hypothyroidism (insufficient thyroxine) affects 2 in every 100 women in the UK and is most common in women aged 40 to 50, although you can develop it at any age. The risk increases with age, family history and if you've just had a baby. The most common symptoms of hypothyroidism include relatively fast weight gain, or inability to lose weight, dry skin and hair, fatigue, depression and a puffy face. Also migraine, loss of libido, infertility and poor memory. Symptoms of hypothyroidism are varied and usually appear over a period of time. They are often put down to a busy lifestyle, needing a holiday, getting older and middle-aged spread. Fortunately, hypothyroidism is perfectly treatable, so if you are having unusual problems with your weight, ask your doctor to test your thyroid. Betty

Update: Lowered my dosage, feeling more tired(in my mind ?? ), hair so dry. No weight loss now for about 15 weeks. Saw Dr tonight he is making an appointment for me to see the consultant at the hospital. I feel he at least is listening to me. A fasting blood test in the new year, already booked to check the levels again. Oh how I hate those needles !!!!!!!!!!!! I'll let you know when I get an appointment. Feeling rather low at the moment seem to be pedalling backwards against the flow. Take care anyone reading this Linda

Believe it or not Dr phoned yesterday and appologised for not getting back sooner !!!!!!!!!! Unfortunately the endocrynologist suggested lowering the thyroxine dosage to hopefully stimulate the piturity gland into working better on its own. And help the alopecia associated presently. Worried about gaining more weight, but will make an appointment to see him again in 2 weeks at least he is listening to me. I'll keep you posted as to how it goes on. Thanks for the support Linda :o)

Hi Ken and Linda, and everyone else Ken is right - hold your head hight for the test - personally, once the results are in, make appointment to go and see your Doctor, and talk face to face, and make notes , or ask nd ask again until you understand things, (sometimes I know I forget what I've beentold!!) or take someone with you. Maybe - if nothing is or appears to be done - ask for a second opinion (depending on how good your doctor is). I'm already on metformin for diabetes - that has helped a little. Was put on metformin as soon as I was diagnosed with diabetes last year. Due a review for them in new year. Good luck and hope that things are resolved. Please let me know how you get on Linda, and pm me anytime. Regards Liz

Hi Elizabeth and Ken Thank you both for your good wishes I will let you know how I get on and hopefully the Dr will advise over the phone or say I should see him at his clinic. I have heard of the metformin before, I know of at least 3 ladies who have been prescribed it for pc. My diabetes levels are just within normal at present, so I might ask about that again. It really is hard to fight all the time though. Have a good weekend one and all Linda :o)