General Chat

it used to be the elder doctors under stood and were more caring not now it was a young locome doctors sent me for a scan thank god he did otherwise I would not have known.

Michael..

So glad you have got most of the details sorted and so sorry you had to get rid of the car.

By the way that ain't a winge.it;s putting your thoughts down as you think of them.

Hugs,,, <3 <3 <3 <3 <3

feeling a bit stressed to day I phone the doctors on Monday cos I need to get better pain relief was told next appointment date would be in 5 days. so aske for phone consultion which was to day told doctor I need to up pain relief as I have only been taking paracetamol 8 per day to takr the edge off pai also needed sleeping tablets as not sleeping at night only during the day which I don't wont to also need an inhaler which they know a bout he well you will have to come in to see me so I told him he,s as about as much use as a chocolate tea pot. and put the phone down. now I have to get hold of my lung spec nurse at hospital and get her to sort the t****r out lol don't like to bother her as I am not the only one she has to deal with. also I phoned insurance cop to activate terminal illness clause the were very good got the papers this morning which I had to sign so far so good I thought on it said the wanted ths details also some thenthing call roll number which I did under stand so phone bank all I got was press this one then press this you just cant speak to any one these days so off the wife tolddles on her scooter to bank to be told it was not n/a. still all sorted now sorry for the winge. :-) :-)

Hi Michael
Sorry to hear your news
Just wanted to tell you about a non invasive treatment we got for my dad
He was diagnosed with an aggressive mesothelioma in dec 2010
He was 82 and not offered any treatment
I happened to read an amazing article about something called paw paw cell reg and we decided to give it a go
Dad could not swallow the capsules do we devised a 2 prong plan to keep his weight on and attack the cancer
We made him a 500 ml milkshake every day out of a bottle of cream 100 mls of milk
Berries and icecream or chocolate and Icecream
We opened the capsules and mixed them in to his drink.
WELL much to the specialist surprise he fattened up and looked really healthy until feb 2012 when he got a tooth infection and developed heart failure
When he felt ready to just let things go we took away the drink and the pawpaw and I swear within a fortnight his whole chest wall was covered in visible tumours
You had to see it to believe it
Dad died in may 2012 having done so much better than anyone would have imagined and I really believe if not for the heart failure he would have hung in longer
Just look it up and see what you think you can get it online
Regards Tania

That's a shame Michael but honourable of you to stop driving before an accident might occur. Pat on the back for you altho I know how hard it must have been to make the decision. Can you get help from DSS for costs of taxis to appointments etc? Might be worth asking, in fact why not contact someone like Marie Curie or MacMillan people and ask what help you can get. The things that are available are for people like yourself.

You are often in my thoughts,

Lizx

last bit of inderpendce gone driving lience next I exspect. :-(

Aww Michael really feel for you. Chin up. xx

well yesterday was a sad day for me I decided that due to my condition and becourse of safty I would give up my mobility car. as I did not want to cause any acciedents if I felt unwell while driving well they picked it up yesterday. so now I have to use taxi,s all the time. the car only had 496 miles on her from new who ever buys it has a bargin. end of 50 yrs of pleasure. :-( :-(

Michael,

My Dad wanted half his ashes returned to the UK. The rest - he said "surprise me"... :-D :-D...

Personally, I like the idea of having somewhere to visit. ( The UK is a little far). I have a fear of being 'covered' in ash - standing down wind ;-).

Thanks Mersey and Purple.

Susan-nz,I am sorry about your poor Dad. That's just what happened to my late Dad, he kept going to the doc with 'chest infections' as the doc said, and it was only after two years of 'chest infections' that he was investigated further and found to have the dreaded illness, in August 1989. A smoker most of his adult life (and possibly before) he had paid the price. He only had a little treatment and that was to ease his throat so he could eat properly, that and a couple of weeks respite care in a hospice, kept him going a little longer but he left us near the end of January 1990, aged 79.

I am sure with the chemo Michael you will have more time with your family and will get those tales recorded.

It's good that you have the other details sorted out for the family, makes it better for them to know they will do right by you but hope it won't be for a good while yet.


Lizxx

Nice one Michael, I suggested recording and already you are on to it, I think it will be a great way to leave your memoirs (and no one will be able to comment on your spelling lol). Your words will mean so much, telling the story in your own way rather than trying to write it down, proper like, will be much more personal and natural.

Good luck with the chemo.

Lizxx

So sad and sorry to hear this Michael. I am pleased you are going to have the chemo tablets. What a brilliant thing to think of in recording things as they come to you for your son and family. I will be thinking of you. Try to keep your sense of humour which we can tell you have. Take care <3 <3

Sad to hear your news Michael. The tablet is not so intrusive and hopefully will give you more quality and quantity of life. Take care. <3

Glad that your visit to the oncologist went well Michael and that you have decided to begin chemo tablet treatment.

That is a good idea to record your thoughts so that your son and family will have some very special memories which will be priceless and precious for them. Well done you !!

thank you Mersey. :-) :-)

susan- nz thank you for your reply I am very sorry to hear of your loss and the of the booklet which was a very good thing I have talked to my family about what I want done except what I want don't with my ashes I did want to be scatterd at sea but now not sure as I gave my space in the crem to my younger brother when he passed on two years ago in feb. so iam thinking I will buy another plot and be there near him also so family can visit if they want too. the rest is sorted.xx

Michael <3 I think thats a great idea, what you are doing

Susan-nz as always <3

Hello Michael,

I haven't spoken to you before, today I read your post. I am so very sorry to hear you have been diagnosed with terminal cancer.

I have had a quite recent experience with my Dad. Sadly, his GP mucked him around for over a year so by the time dad was diagnosed in September, treatment wasn't an option.. My Dad passed away on November 6th. It was a really hard time for all. I can appreciate your visitors 'fluffing' over you. Good on you for putting them straight !!.

My Dad was in and out of Hospice, one service they offered was a volunteer to come and listen to Dad speak, take notes and write down Dad's story that he wanted told to us, the family. We gave the volunteer writer photo's of Dad through his life to go in the booklet. Dad was able to read the draft before he passed away. The finished booklet is a treasure. I can 'hear' my Dad talking when I read the book. One thing I never had the nerve to ask my Dad was if he had any girlfriends before he met my Mum....

One thing I would advocate is to 'talk' to your family , as you are doing. I wish we had had more time to talk with Dad. I think we left Dad to start conversations when he was able and felt comfortable doing. I do wish I had instigated more 'conversations'. I will treasure his written story <3.

Without being too morbid, it is important you tell your family of your wishes. We had to have those talks quite late in Dad's journey.

My very best wishes to you, I hope the Chemo treatment will be helpful to you and keep you well for as long as possible.

A big hug coming to you and yours,

Susan <3

thank you MR MAGOO good thinking but then he might of had enough of me when her was younger nagging him might put him off. lol

Was just thinking Micheal wouldn't it be nice if you told your stories and left them for your so he could hear your voice.

Best of luck with the treatment.