General Chat

Morning Michael, I hope you have a good supply of teabags in for all those visitors, enjoy those who come today and glad you could spend quality time with your baby sis yesterday.

Keep plodding on as you are doing, you certainly are keeping on top of everything. I hope your computer behaves from now on so we know you are about.

Lizxx

Good to hear you had a nice day yesterday Michael. I hope today is the same for you. Enjoy your visitors and take care. xx

had a nice surprise visitor today my bil brought my younger sister to see me today before talking her some where for her birthday treat it was so good to see them as I don't see her often as he job takes her all over the world she a high flier in a big bank, stayed about four hours we had a good old chat even got her to agree to help with getting info for me on the family tree before she was not interested . so a good result all round.she,s off to Canada in four weeks so may be she can visit two half sisters family if she can find time. had a good day all round health and with visitor great just the pick me up I needed. got two more to come tomorrow. :-D :-D :-D

Good to hear you're ok and back online.

One thing that makes us smile is your sense of humour given your situation.

Take care...... <3

Thinking of you and yours Michael, your smile lights up the boards :-D :-D <3

Serious illness brings out skills we never knew we possessed. Keep taking the tablets and keep posting on here Michael because you are a real inspiration!! XX

Hello Michael,
I had to laugh when you said about writing the meds down. My OH has been ill recently and on liquid morphine and the slow release tablet. apart from loads of other medication. My list goes stroke x 2 (thats his stroke tablets) asprin x 1, tummy x 1 pain liquid x1 pain tablet x1 with the times. well I understand it. My daughter who is a nurse comes in and says MUM what you doing to him surely you cant understand what you given him.
I'm sure the nurse will get use to whatever way you jot it down. dont be like me thou and think oh I write that down in a minute and forget.
Thinking of you,
Anne x

hi yippe I,m back on line was off all day yesterday and most of today well I did not get out just about to go when it hissed it down so spent most of the day reading to have some thing to do,
susan-nz I do have a meter which I got a while ago free it came with ten test strips but when you buy replacements they cost the earth so tried the doctors they said I could not get them on prescription. the reason I have to make a note i have liquid morphine already its to make sure the the new meds will be the right strength as they will be slow release ones .
the pain killers i also have are taking longer to kick in hence liquid morphine which i only take as a last resort.
would you belive it in the last 4days i have had 3 letters and 1 form from the dwp two saying i cant have pension guarantee credit only saving credit the third saying i will get both, now today i get a form requesting details of my savings theres a laugh details of dla, and a wage slip from my occ pension so i filled it in emitting to add dla also telling them i have already told them i only get a wage slip once a year from my former employers. that's in april each year i have been telling them that for the last ten years told the all details are on file let em pick thebones out of that, what a waste of money on postage.prob have a phone call now so i will have to go all over it again. still i don't have nothing else to do only play games with them, lol.
on the lighter side i have had a good day to day just a bit boreing with no internet still cant complain it,s on now.
now i have a lot of emails i must answer after being off line i have had 8 from my sister in America she must be thinking i,ve popped clogs so i will have to disapiont her lol. :-D :-D :-D

Hi Michael,

Glad to read the palliative nurse has finally visited you and can offer you more pain relief. My Dad had his meds pre packaged by the pharmacy. They were on a roll and he could just tear off the right package for the right time of the day, ie: breakfast, lunch time, dinner and bed. It was a great help to him and the family, no mixing up the drugs. :-). Might be easier than writing down or maybe it is the extra morphine that needs to be recorded.?

Hope you managed to get out for some fresh air. Keep warm.

Susan

Michael. Hope you managed to get out for a while today, and you are feeling ok. Thinking of you and your family.xx

Michael,
Just saw this advertised and wondered if you were interested in applying for this ,so c and p'd it for you.
We are all thinking of you x x

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Hi Michael, I am glad things are starting to get sorted out and you are getting help from Palliative care people and others.

Best of luck to your son for things to go better for him and his wife too, maybe the flat not being ready is a sign he isn't meant to move there, but to go back with his wife.

Whatever happens I can tell he will be there for you and your wife all the time, so he deserves some good things in his life now.

Take care if you go out, the wind is so strong.....

Lizx

Good to hear the palliative care nurse has managed to get to see you. Hopefully the new medication will keep you pain free.

I hope you are able to get out for a bit tomorrow, just for a break, but make sure you wrap up really warm. The last thing you need is to get chilled.

Have a good night's sleep.

Well that is good news Michael. Let's hope that the change in medication will make you more comfortable and pain free. Spelling doesn't matter, the nurse will be more interested in the times you take the morphine tablets. I hope you are able to get out for a little while tomorrow, don't get blown away though!! Keep smiling. xx

well had a surprize to day the palitive nurse came to day a bit like the buses two at a time she turned up with the dist nurse she is going to put me on a new morphine tablet twice a day to see if that will help so now I have another women nagging me lol. she really laid the law down . I now have to write down when and time I take the meds I think I will have to become a secatary if she can under stand my writing as you can see my spelling is not good, hey ho we will have fun.she spent two hours with me and will be back to check weekly, its all coming together now which is nice less stress now. its not sureposed to rain tomorrow so my be I will be able to go out for a short while for a break feel like I,m locked up in jail. :-D :-D :-D

Michael I am so pleased you have had a restful day. Good to hear the nurse is seeing you tomorrow. Hope you do get some help with taxi fare. The added expense is a worry when you are ill .
Hoping your son can get things sorted out in whatever way is best for him.xx

thank you all I have had a restful day to day no worries just a chill day and surprise the palitive nurse phone today she is coming on tuseday delay has been becourse of staff leaving and sickness, so hopefully that's another job done the nurse will be here tomorrow pm, to see what she can do for me I think she can get me a card so I can get cheap taxi far I think it will be half price which will help.
son cant move in the flat as the roof is leaking was surpposed to have been done but they have cocked it up but I think he will give his marriage another go, they are a least talking now.so that will be a bit of weight off my shoulders, as we only have a one bed flat he has to sleep on the sofa and has to get up to go too work at two thirty am six days aweek so he don't get much sleep which is not good as he is a lorry driver. :-D :-D :-D

Hopefully, another job you can cross off your list Michael. It is mega irritating to have to chase people to do what they are paid to do, and so draining in energy too.

Take it easy now and I hope you manage to get a decent nights sleep. xxx

Glad it looks as though the insurance problem is sorted but it is very disappointing about McMillan or Palliative care whatever. Not what you normally expect from them is it? It is not so much the care but the help you should be getting with finances, travel etc. Good job your niece has put a care plan together for you.

Try not to get stredded over things though. you need your strength to cope with the chemo and stress won't help. Thinking of you still.

Dear Michael
I don't say a lot but i follow your progress,you are in my thoughts always Lily