General Chat

thank you all for your messages, not so good today the doctors changed my pain killers they don't agree with me making me feel sick had to take anti sick pills will have to phone em in the morning. still no news from mcmillian but had a call from pallitive care people coming on Monday don't really want to see them as we have had dealing when my late fil law was in hospital they did nothing for him so I will properly listen to them then tell em to do one. I,m not being ungrateful it,s just that it stick,s in our memory,s. my niece was able to set every thing up as shes been working for care watch for a long time think about 12 yrs so she knows what to do. :-) :-)

Sorry to hear the painkillers do not agree with you Michael and hope the doctors can give you some that do. It is awful feeling constantly sick. Why don't you ring the McMillan nurses again. They should have got back to you by now. Do listen to what the palliative care people say next week, they may be totally different to who your f.i.l saw. Then just go with what you find is best for you. Take care xx

I will listen to what they have to say when my fil was in hospital with cancer he had an aggressive type they just looked in his room did not see to his inuslin drip with was beeping away his room was never cleaned wife and mother in law had to do it and wash him. that why I have bad vibes about them. still as I say I will listen.xx

I understand Michael, we also had similar things happen. xx

Hi Michael, hope the different meds will help you and not make you feel sick, you don't need that on top of everything else.

Get your niece to contact MacMillan for you, it's not right that you have had to wait so long for their attention. She would feel more able to arrange a visit I am sure, and it won't make you feel hassled to have to push them.

Hope you find the Palliative care people more efficient this time round and they give you confidence to make use of them. You can always say yes and then decline later on if you change your mind.

Take care and try not to get stressed over these things, take them as they come and see what happens.

All the best, won't be on here from Friday for over a week so will miss updates unless I can get online somewhere while I am away.

Lizxx

thank you liz please enjoy your holiday hope the weather is ok for you all xxx
:-D :-D

Hello Michael, I hope your sick feeling has cleared. That's not nice at all.

Our neighbour had bad experience with MacMillan nurses in our area (Yorkshire) and had to chase them for her husband's needs and found them quite rude...... unbelievable, but true! She then phoned the Marie Curie team and they couldn't have been more kind, helpful and supportive., not only to the patient but towards the whole family. Just goes to show.... there are nurses AND..... there are nurses!!

Your niece sounds more than capable of making sure that you and your wife are looked after which must be a huge relief for you both right now. Hope you have a better day. xx

Hello Michael, I do hope you are feeling better today and the sick feeling has gone.xx

Sorry to hear the pain killers have made you feel so ill, hope the new medication is better for you, difficult to get on and do the things you want to do when you feel constantly ill. Sorry not been on for a while but we were up in the Lake District with daughter and son in law.

I am surprised the McMillan nurses have not been to see you. I have had no personal dealings with them but from people we know and family who have they were there promptly and so very helpful.

And a good friend who had palliative care could not have been better looked after. So I suppose it depends on the area/team. Maybe you should phone McMillan again.

Hoping you are feeling better Michael, and have heard from Mcmillan support.xx

Hello Michael...hope you are feeling better today. Hope you hear from the McMillan nurses soon too.

jude xx

Sending good vibes to you and your wife and hope you both have a decent nights sleep. xx

hi sorry I aint been on for a bit not had a very good two days I have been suffering with a ear infection phone oncolagey for advice was told not to take my second chemo tablet in case. have to see then on Monday if infection has gone then restart chemo, also told as the tablets are giving me problems to take morphine to see if that's any better. feel like a junkey still if it helps ok.apart from that all ok.still no news from macmillian I have given up on them we will sick with the care package which is in place.
:-) :-) :-)

Hi Michael - sorry to hear that the last two days have not been to good for you. I have to say I am disappointed that no one from Macmillan has been in touch.

I hope the ear infection clears up quickly so that you can get on with your chemo - take care and chin up.

Jim

It's a shame that you have the ear infection Michael. I hope it's not too painful and clears soon so that you can get back on track with your chemo treatment. xx

ear infection seems to be a bit better this evening. the grand children are coming tomorrow wife is going to sit them down and tell them whats wrong with me and about the treatment etc. they are ages 11,10,and 7. the eldest should take it all in as my step daughter,step mum died of the same thing last year she did not have it long.after a lot of screaming and tears they settled down the youngest on not sure how she is going to take it , she knows I am ill I told her I have a bug in my blood to try and smooth the way. I hope, we got a couple of books for children on the subject which I hope will help.fingers crossed I will stay out the way while they are being told to give it time to sink in. wish us luck. <3 <3

Sorry to hear about your ear infection Michael and hope it clears very quickly so you can continue with your chemo.
Sending you love and luck for tomorrow. I will be thinking about you all.xx

Sorry to hear you aren't doing so well at the mo Michael, hope the ear infection clears up soon and you can restart the chemo.

Hope the talk with the g.children goes ok and they will understand and learn how to help you through, sad tho it is, it is better for them to know the truth. My son learned his beloved Granddad had the same cancer when he was only 7, and managed well, just loved his Granddad while he had him and spent as much time as possible with him. Remind me when I get back to tell you a story - menton goldfish!

Take care and will be thinking about you while I am away,

Lizxx

thank you liz have a great break here in Essex although theb weather don't look promising surposed to brighten up tomorrow. xxx :-D :-D

Sending you and your OH luck today Michael although the way you and yours are dealing with it is inspirational and such a lovely way of doing things <3

Hope your ear infection is not too bad today, thinking of you all <3