General Chat

Hello Linda
Sounds like Esme is doing well. Pleased to hear that. Is she on Neo Cate milk do you know.

My best wishes for Esme as well as Katie.

Thank you for the website Brenda, it was interesting and hopefully she wi;; continue to improve

I saw Esme via Skype last night. She was in her cot watching her mobile go round, kicking out her feet and trying to reach towards the shiny play mirror on the side of the cot. She just looks perfectly normal for her age, until you notice the tube going down her nose.
She is still the same, refusing to drink anything by mouth. She is in less pain now she is on the dairy and soya free predigested milk, but she is still sick after every feed

Sending more thoughts to Katie and Esme.xxx <3

Brenda, I have been following this thread anxiously. I don't usually go to websites that are put on threads, but I did in this case. It was very interesting, and it seems to me to point to hope for Katie.

Huia.

Brenda, thanks for the update on Katie. Let's hope and pray that they can do something to make her well.
Sending lots of positive thoughts and prayers to you and all the family, and lots of love and hugs to Katie.

Linda, also sending love and hugs to Esme and positive thoughts and prayers
to you and the family.

Sallie.xx

Hi Brenda.

Just looked on that website and had a read about Pig. At least now they have something to look into. I pray that Katie gets the right treatment and improves very soon. Reading that Katie was looking around sounds so good. Bless her and all your family. It must be so hard. We went through a very hard time 26 years ago with our youngest and she could not breath on her own for over 7 months. Totally different thing but understand how frightening it all is. Love to all xx <3 <3

An extremely stressful time for both families of Katie and Esme. Positive thoughts and healing prayers sent to the babies and all relatives right now. xx xx

((((((((HUGS)))))))).........for all concerned.

In our thoughts.

Mr M.......xx <3xx

This is the latest of the things they are looking into,.When I was told Pig thought this was the easiest way to explain it by giving website.
On reading some of this see that identical twins can be prone.Spoken to daughter who has seen her today and talked to doctors,about losing J's twin,they are getting the reports from the hospital where he was dealt with,but it was 25 Years ago.

Daughter says that Katie was looking around and behaving as a 6week baby should.
Changed Avatar to today's pic.

Hope they are working as hard to sort out little Esme...must say they are doing everything they can for Katie.


http://www.child-foundation.com/education/PIG

<3 <3

Poor little girl, I hope things can be adjusted so her eyes aren't affected, and that something can be done for her.

Hope Esme can keep growing and gaining strength, what a worry for both families, I keep thinking about all of you.


Lizxx

Thinking of both Katie and Esme, two special babies..... also thinking of their families.

Sending positive thoughts and prayers to you all.

Sallie.xx

Loving thoughts for Katie and Esme <3

Lesley x

(((HUGS))) for both families.

Ongoing thoughts and prayers for Katie and Esme,....two special little babies. xx xx

Still thinking of Katie and Esme and wishing them well. Can not imagine what their families are going through.
Sending love and positive thoughts their way <3 <3

Poor little soul, life is so unfair

Esme is much the same, she is growing but still has to be fed with the tube

Thank you everyone for your support.

We are still awaiting news from America.
Speaking to my daughter yesterday she said that Katie's lungs stopped growing at 26 wks ,and they are like sponge.
I wonder they didnt spot this when she went for ante natal!....she had a bad time with strep B with the boy 20 months now,but she didnt have that this time.
Just messaged me to say that they are trying to cut down on the number of breaths the machine does and having her eyes checked out tomorrow as they could be affected by the ventilator.
It's a waiting game!!

Hope Esme is improving. <3 <3

Jean hope you enjoyed your time in Llandudno.get in touch if you go again!

Hoping and praying both baby girls are well cared for and parents given the support needed over the weeks of worry and stress. xx

we have been to Llandudno so kept the babies and you Brenda close in our prayers, love to the families also.... will continue to keep you all close...

love Jean xx