General Chat

A nightmare journey that goes on and on. Thoughts and prayers for you all. xx

Poor little Katie - she must be a very strong little girl to cope with everything that has been thrown at her. Positive thoughts for her parents and family <3

Just had this message........poor little Katie....I asked what the line was and it is for a permanent cannula.She didnt go down to theatre till 4 pm today...Saturday....
Hope she can cope with it.


She is still bleeding a bit,but according to my daughter ,they don't know where the blood is coming from.



She had op for line put in that went fine when she came back she cudnt breathe the side of her was pouring blood and she went in to cardiac arrest I panicked loads. her tube slipped so had to be put bk in place surgeons on stand by for her bleeding and things settled down slowly still concerns with her she has to have an hernia op but they leaving a while cz of this one x

Hope the news is good for Esme...watching Children in need last night makes you realise the number of children who are sick...but don't they seem to take it in their stride!

.Ongoing thoughts and prayers for a very special baby Katie and her parents and family. The stress and worry must be enormous!

Thinking also of baby Esme and her parents and family too.

A long stressful road ahead for little Katie and her family but what a fighter she is. Positive thoughts and best wishes for you all for whatever lies ahead.

Special thoughts too for baby Esme and her family.

I am glad that they have got a diagnosis and a time scale. At least now, they can plan for the future

Thinking of both families and wishing them well.

Although it seems that Katie will have a (very) long stay in hospital, at least now the medics feel confident enough to do some forward planning.

Perhaps further down the line she will be able to transfer to a hospital nearer home.
I hope that Katie's family can draw strength from each other and will be able to sort out a routine that suits them all.

Thoughts also to Esme, I hope that whichever feeding tube she is given, it will be the one that is best for her in the long run.

Warm wishes and healing vibrations and sent to both families.



<3 <3 <3 <3

It's good that there is at last a definite diagnosis but to have to live away from home for so long will be very difficult and costly for the family, I do hope they can get things sorted out without too much hardship and that little one can do well in the hospital. If the house can be successfully altered to accomodate Katie's needs in the future it will be better but a long road ahead to that situation.

My best wishes to them all that things go as smoothly as possible.

Lizx


Good wishes to little Esme too

Hi Brenda.
I would think that it is good to finally have a diagnoses for Katie. Having said that, it is going to be so hard for all of them. It is draining just going to hospital and having to juggle family life, travelling and staying away from home. We had to do it years ago.
I do hope the family get some help and grandson finds a way around work. As you say some big decisions to be made. I am thinking of all the family.xx

Still thinking of Esme and family xx

Well.....there has bed a big meeting with the doctors today and they say it is definitelyPIG....see website previously.........
She will be in hospital on ventilator for about 12-18 months,then they are going to check out the house to see if it can be adapted to have bed and equipment downstairs.
There is talk of eventually having a tracheotomy instead of tube up nose.

Parents have some big decisions to make...as grandson can't go to his present work from the hospital,and her little brother will have to live in the hotel,apart from going to his grans from time to time.

Will post if I hear more.

Hope there is some good news about Esme and her feeding. <3 <3

Oh, poor little baby girl, just one thing after another, bless her. Sending positive thoughts and prayers to Katie and all her family. <3 <3

Also sending positive thoughts and prayers to baby Esme and her family. <3 <3

Love, Sallie.xx

Oh poor little darling. My prayers are with her and the family tonight. Keep fighting little lady, God Bless You. <3

Thoughts and prayers for little Esme too <3

Aww Brenda that poor little baby. My heart goes out to you all. I do hope that Katie can have medication to help with the flu. She is obviously a fighter as she has been through so much. I pray she will overcome all she is going through and then be able to live a healthy life with her family. I send my love and prayers. <3 <3

Poor little Katie has now got flu...it's not a cold as they sent sample away..they've been told its not too dangerous a one...sent pics and her eyes are red and face swollen.....
Need all the prayers we can get for this brave little one.

Been away for a couple of days. Sorry to hear about Katie not doing well a few days ago and hope she is settled not. Thinking of all her family at such a difficult and worrying time.

Also thinking of Esme and her family and hope she gets to have the feeding tube her mum wants for her. I think she should be able to have it done. It will take away the worry of Esme pulling at her nose tube. She is at the age of getting hold of things and pulling on them.

Bless both of the little babies and their parents and family. <3 <3

Gentle hugs for both special babies and prayers to help strengthen their families. X X

Katie <3 & Esme <3

How silly that Esme can't have a stomach tube so she can have her hands free and enjoy touching things etc. If it would benefit her I can't see why the doctors won't do it. Stupid regulations I suppose

Katie certainly puts up a fight to survive and I hope she will continue to do so and that the results from America come through soon.

Bless them both,


Lizxx

Still thinking of two special little girls Katie and Esme and sending lots of positive thoughts and prayers to both of them and their families.

Love, Sallie.xx

Special thoughts continue for Katie and Esme <3 <3 <3

Lesley x