General Chat

So pleased Katie has got through this last hurdle. She must be so strong and determined. Thinking of Katie and all her family. <3 <3


Hope Esme is doing well <3 <3

A beautiful photo of baby Katie..... what a little star!

Hope that baby Esme is improving too.

Ongoing thoughts and prayers for two special babies and both families. xx xx

So pleased to hear such good news Brenda. I hope and pray that baby Katie will continue to improve each day from now on. Still sending lots of positive thoughts to Katie and all her family. <3 <3

Also sending lots of positive thoughts to baby Esme and her family too. <3 <3

Sallie.xx

Positive thoughts for Katie, Esme and their families. <3 <3 <3

Lesley x

I am pleased at the good news Brenda, I hope she continues to improve

We are just back from spending a few days with Esme and her family. Poor thing has a cold,so she is coughing all of the time and that makes her sick.

Her parents went out for the first time since she was born, that meant we had to learn how to do the tube feed. I was a bit nerve racking, but we managed fine. She is a bit behind what she should be doing, she is not very good at holding her head up for instance. She did start talking to her toys while we were there, she was chuntering away by the time we left,so hopefully she will start to reach out for them soon.

She still refuses to have anything by mouth, my daughter was trying to put baby rice onto her dummy, but she wasn't fooled by that

Poor little Esme, she could do without a cold bless her. What a real treat for her parents to have a night out together and it will have been special bonding time for you to be baby-sitting such a special little girl.

Ongoing prayers for Esme and Katie too. Real little fighters the pair of them. xx xx

This is the message I had last night.......


not much said....Wt we didn't know all ready they just said we need to make a decision......did we want Katie to go on long term ventilation or let her go xx

Spoke to all teams today they are saying we young and need to ensure we are strong as a couple and need to decide if it will be hurtful for Katie down the line and won't be much life for us due to not being able to go any were especially if j goes in work again ill be trapped in house permanently, we need a car and funding is getting asked for j to start lessons and get passed on his driving.... .house ok as check list was done and they can work round our house so we decided to make a start and got laminating flooring earlier today to start lounge hopefully move in at least Xmas eve would be really nice xx

Me and J said if it means a life for her it worth doing x

Those are a young mothers own words....doesn't it make you put things in perspective?


Hope Esme is doing OK...still thinking of her too. <3 <3

OMG Brenda - can't think of the right words here <3 <3 <3 <3 <3 <3

I have nothing but admiration for them Brenda. I hope they can take joy from all the little things that Katie achieves that most parents just take for granted.

xx

Ann ,I was the same last night...didnt know what to say in my reply.

I will help as much as poss tho Im a long way away...but financially I can contribute a bit.
My daughter and J,s 2 brothers live near and will help out,,,also his sister with 4 girls lives near and has taken their little boy out a bit with them...so there is some family support.I just hope they stay strong. <3

If there is a quality of life then the right decision has been made.

The future is unknown but with the advances in medicine you may well have made a better future for Katie.

Wish you all the very best and have the best Christmas you can.

<3xx <3

Hope Esme is progressing too....... <3

We had to make that decision 26 years ago . I know every ones situation is different but this young couple are doing the right thing for their family. I admire them so much. It will be very hard and they will need a lot of help. I believe if a child is born and fights for life like Katie has done then she is determined to be here and deserves to be. Her parents sound fantastic and I am sure they will give her a good life .Bless them all and I hope Katie gets home soon. <3 <3 <3 <3

Katie the little fighter has her parents special strength. They will need good support from family and friends but I hope baby Katie is allowed home soon so they can all begin to relax from the hospital environment and become a special little family.
Ongoing thoughts and prayers for them and also for baby Esme and family too. XX XX

What brave parents and they have passed their strength to Katie to fight on as best she can. I hope they can get things the way they need for the house to be ready and j. can pass his test and get help with a car etc Life is turning out to be so different from the way they expected yet they have faced the challenges and will go on doing so because Katie is part of the family and they want her with them. I am glad there are lots of family members around who will help out, and maybe next year they can find a local hospice type place that will help too by giving them somewhere to go with Katie if she is able to go out and special carers who can give them a little break now and again to spend quality time with their little lad.

All good wishes to them that things go as well as possible now


Poor little Esme is getting one problem after another, bless her, but I hope she will continue to fight on and start to make her milestones soon. She will give joy in whatever she achieves and will know love around her, as will Katie. Best of luck to Esme's family too

Lizx

I hope once they get her home, they will be able to get as much help as possible from the authorities. It is good that they have family around them who can help with their little boy

Esme is now officially developmentally delayed, she isn't putting as much weight on as they would like. She has now been referred for a stomach tube, but the appointment isn't until the end of January. My daughter can't wait until she has one because everyone she speaks to says it made life much easier for them.

They are trying to get her eating by mouth, she had a couple of teaspoons of puréed apple yesterday and liked it, but didn't take as much today.

Linda....these poor little girls are having a hard time aren't they?
Hope they can soon sort out the tube for Esme..sometimes you have to keep on at them to do something don't you?

Katie had another set back yesterday ...she got a viral infection and is now in the ward for infections...I expect her immune system finds it hard to cope...all I can think to say that maybe it will make her more resistant to them in the future.

This morning my daughter told me that she'd put on weight and now 8.15. But just been told that she's not feeding today and down to 8.4. That seems to me a lot to lose in a day..don't know if they got it wrong.

Parents are determined to do what is necessary to look after her..she has fought for 3 months now.....how could you give up??

Thinking of both these little ones who are such fighters



<3 <3 <3

I suppose they are very susceptible to infections, there are so many around at this time of the year, I hope she will be OK

Thinking of Katie and Esme every day and hope they both get what they need to make them well. xx <3 <3

Ongoing thoughts and prayers for Esme and Katie and both their families today xx xx

Sending more thoughts out to these two little ones and their families. What little fighters they are and the families are so patient and caring, I admire them all. <3 <3