General Chat

Brenda, thanks for the update on Katie. Let's hope and pray that they can do something to make her well.
Sending lots of positive thoughts and prayers to you and all the family, and lots of love and hugs to Katie.

Linda, also sending love and hugs to Esme and positive thoughts and prayers
to you and the family.

Sallie.xx

Brenda, I have been following this thread anxiously. I don't usually go to websites that are put on threads, but I did in this case. It was very interesting, and it seems to me to point to hope for Katie.

Huia.

Sending more thoughts to Katie and Esme.xxx <3

Thank you for the website Brenda, it was interesting and hopefully she wi;; continue to improve

I saw Esme via Skype last night. She was in her cot watching her mobile go round, kicking out her feet and trying to reach towards the shiny play mirror on the side of the cot. She just looks perfectly normal for her age, until you notice the tube going down her nose.
She is still the same, refusing to drink anything by mouth. She is in less pain now she is on the dairy and soya free predigested milk, but she is still sick after every feed

My best wishes for Esme as well as Katie.

Hello Linda
Sounds like Esme is doing well. Pleased to hear that. Is she on Neo Cate milk do you know.

Brenda, an interesting link. I have never heard of Pig before so hoping this new information will help the doctors to take good care of your gt granddaughter..... what a little cutie Katie is.

Linda, hoping and praying that your granddaughter continues to improve.

Gentle hugs to both families today XX XX

That was very interesting Brenda, and it does sound like Katie's symptoms. Having a diagnosis is half the battle and I hope the doctors can now help Katie more. Glad she is interested in things around her and I am sure she is determined and a fighter and will get stronger as time goes on.

Special thoughts for little Esme as well and all the parents and families of these little fighters.

Lizxx

This is her side of message.I do admire her for being so positive .encouraging hem to stay strong!


Ok she went grey before with blue lips but she has now gone to original colour took time but she got there doctors were meant to have meeting today with us but more info due bk hopefully tomoz if not nxt week also America research due nxt week also xx
They're saying there's not much hope,but I believe there is.

Doctors are saying as they do not av much info on pig and the other diseases and the treatment used to cure it is already given and not working they say xx

They think she will need long time ventilation or the worst but I've seen an improvement in her since birth so I think they need to research harder xx

Not going to give up ever. xx



My heart goes out to them....it's so hard.

Hold in there Brenda, she has fought so hard for this long <3 <3 <3

Aww Brenda, it is so sad. Katie must be strong to have come this far and she is still fighting. I admire her mummy for staying so positive. Hopefully America will have more information on Pig and further treatment can be given. She looks a lovely baby in your picture. Wishing for all the best for Katie. Love to all the family <3 <3 <3 <3

<3 <3 <3 <3

Thinking of Katie and her family <3 <3 <3

Lesley x

Healing vibes to both babies and positive thoughts and prayers to all the families
it must be emotionally draining..... God bless you all. XX XX

<3 <3 <3 <3 <3

My thoughts and prayers to all the family and of course little Kate but a massive big hug to Mum for remaining so positive , I am with her every step of the way <3 <3 <3

No meeting as yet,but these are latest messages...........

Staying positive!


Me and J both got to have a hold yesterday so that was nice xx1

Katie not improved there only letting us hold of her to get us used to the ventilation they think she won't come off so preparing us we think xxx

very alert now she sticks her tongue out to copy u now lol xx

Positive thoughts for Katie, Esme and their families <3 <3 <3

Lesley x

Pleased both mummy and daddy got to hold Katie. Had to smile at the thought of her sticking out her tongue. Love to all the family xx <3 <3


Still thinking of Esme and hope she is doing well <3 <3

Ongoing thoughts and prayers for baby Katie and baby Esme and both families. xx xx