General Chat

Hi Jules, the broken sleep is the worse part for me.

I wonder if there is a local Scout group who would help you do some gardening work or people at the local church? Is there anything you could do in return for the work like babysitting or helping someone on the computer in return for them helping you out?

Maybe if you don't think about the whole garden and just think about one job at a time, it won't seem such a lot to worry over.

Been trying to find a chance to call you for a natter but you know how it is here with me, maybe next week sometime when he is on late shift

take care
love
Lizxx

Hi ladies....Yes Liz I remember you telling me you had fibro as you thought that is what I had...You were right!!!
Today hasn't been a good day, have a thumping headache that just won't go away...Couldn't sleep last night, I got up 4 times...There's so much I want to do and I'm just not able to...Been thinking about my garden as alot needs doing, new fence, patio needs relaying as it's uneven, bushes need taking out and a small tree needs cutting down....I hate asking for help and I just can't afford to pay anyone to do the work except for the fencing....

Jules x

Meant to say Fibrocitis!

Dolly X

Morning Liz, FM was called Fobricitis years ago, or just aching muscles and called rheumatism, it has become alot more defined now in symptoms.

Ann, I don't think long term is affected, it just seems to be memory loss in naming items and finishing a sentence when you can't remember the word you need to use. I'd ask her GP incase it is something else thats causing that much memory loss.

Have a good day everyone :-)

Dolly X

I think my sister was first told it was ME then fibro.

Does it affect your long term memory? I ask because my sister doesn't remember anything about our childhood. I ask her things about our parents (she is 6 years younger than me so had quite a few years with them after I'd left home). And she can't remember a thing. Not even about what she did as a child. I have to tell her. (probably a good thing because she doesn't remember me pinching her when she wouldn't do as I wanted!!!!! :-)

Morning Dolly, sorry I forgot you had it too

I wonder why it seems so prevalent nowadays or is it that it hasn't been recognised in the past? I remember my Dad saying he was in pain, saying he had 'the screws' in his shoulders, maybe it was fm but not recognised as such or even named as such in those days - I am going back 40 odd years or more.

Wonder when it was first recognised, does anyone know?

Have a gentle day everyone.

Lizx

Hi Jules, Yes I have it too and have had it for many years, it took over ten year to be properly diagnosed as I was first diagnosed with rheumatoid and osteo, then changed consultants and found it to be fibro.
It is very debilitating, the brain fog is terrible, I can't remember every day objects when I'm talking to hubby but luckily he knows what I'm on about,he is extremely understanding thank god or I'd be completely useless.

I know there is a few of us on here suffering with it. Like Liz says there are alot of support groups around the country and online.

Dolly X

Jules, thought you knew I had it and all the others mentioned above, others too whose names I can't recall at the mo but it's becoming more and more common seems to me.

It's slowed me up something terrible and the worse part for me is the poor quality sleep hence my odd hours I keep.

Take care and treat yourself kindly - that goes for all sufferers, it's an illness that isn't visible so people expect more from you than you are able to give most of the time.

There were several threads up, will try and find them later today
See if there is a local support group in your area, it might help you find ways of managing the b***er!

Lizxx

My spelling can be terrible sometimes...I forget how to spell the most simple words!!

Jules x

Yes I suffer from it and take morphine for the pain. The brain fog is awful at times I just sit there looking at the person I am talking to, just cannot think of the word I want. As for remembering how to put the microwave on, forget it.

Caz

Thanks Ann I will take a look.....xx

My sister does Jules, then there is Liz Purple, Dawnie quite a few on here I think. You could try doing a search because somewhere there is a long running thread on it.

Yes sister has spoken about the brain fog.

I was just wondering if anyone else suffers from Fibromyalgia? I have been diagnosed by the doctor today...It has taken them nearly 6mths to find out what was wrong with me...The pain today is almost unbearable...I have been given some painkillers called Naproxen.....
It's the brain fog I find weird...Last night I couldn't even remember how to turn my laptop off!! Gawd i'm getting old... :-D :-D

Jules x