General Chat

When I went to the optician recently for an eye test, I mentioned that my eyes felt a bit sticky in the mornings, he suggested I see my doc to get something as it's probably Sjorgrens, I seem to remember my late Mum had it too and I have a very dry mouth often now as well. Will make an apptmt asap altho I hate the thought of more medication.

Jules, when I was diagnosed with fm the specialist told me they couldn't detect it from blood tests - maybe there is something now that shows up.

The lack of good refreshing sleep is the worse part of it for me altho the pain in my knees from the o.arthritis is excruciating at times, and in my big toe on my right foot!

Take care folks

Lizx

Apparently GR have said yes to peeps putting health threads up but not to talk about dosage.

Puss is away on holiday now so lets let this drop atleast until she gets back!!!!

Jude x

Liz just got back from out of hours drs and she asked what I had and when i said sjogrens she said she hadnt seen anyone with it since she qualified 16 yrs ago.

Not sure if its the fibro or sjogrens but i am being plagued with Urinary infections last year had cystitis so many times and now its bypassing that and going straight to upper UTI and getting my kidneys this is second one in 11 weeks.

And to make it worse developed allergy to usual antibiotics they give for it and being allergic to penicillian as well dont leave many to try.

oh well lots to drink and sleep for me.

d x

OMD its the RR fairy has appeared again :-0

I really have nothing to say on the subject as far as I was concerned the subject had been dealt with and closed last week and i will not enter in any discussions again purely out of respect for Jules this is her support thread when all is and done, however if matters of medication and dosage appear again it will be done obviously out of malice .......have a lovely sunday everyone :-D :-D :-D

well there you go!!!! :-S

twas not me - and I've been RRd :-)

Awwww wossitsay Ann :-D

l would just like to say it was'nt me and l did'nt start the thread going again. lasked it be left alone because Puss is on holiday!!

all i added was well said Ann
so nobody can agree now without getting RRed well i never

Well really it isnt your place to say so Jude, this thread has been running for mths as a support thread not medical advice and people are allowed and WILL voice their concerns its their duty too, as is RR is there to report abuse not simply click on when someones points out the obvious . :-D

Im looking in again ..i read lizs post this morning ..nowt wrong with it. so what was on afterwards...

is this person bored or something.. i wouldnt be sitting at lappy waiting to report .. wouldnt waste the leccy lol.. is it male or female rring i wonder ..

jgee..

Hayley...l did'nt mean the whole thread, just the bit about Puss. Of course its not my right to saystop replying on here, l just thought as Puss is away its unfair to go on at her!!

Hi Liz...

I have probs with my eyes, even wearing glasses doesn't help...One min they are ok and the next i'm struggling to see properly!! Also have a dry mouth to...Oh the joy NOT :-D
Still haven't heard from my GP as to wether he has had the letter from the rheumatologist so still nothing for the pain which is so bad at the mo I can juist about walk to the bathroom...Got to keep smiling though...Thinking of Harmony always makes me smile no matter how much pain i'm in... :-D

Jules I had to stop wearing contact lenses due to dryness the way idescribe my eyes is one minute ok next like looking through next curtain.

dry mouth I was told to either chew sugar free gum or drink lemon barley water, last time i was at mouth clinic they couldnt get any saliva out manually. Gonna get shares in robinsons as drink so much squash

Hayley was way too quiet on here lol Joy saw your comment nowt wrong with it didnt see other ones see thats what you get for going to sleep during the day miss it all. xxx

I drink lots as it is, always on the loo :-D...I can't wear contacts as I have the wrong shaped eyeballs :-S.....I wear a night shield on my bottom teeth at night as I clench and grind them...Have made them very sensitive..

Jules x

Jules I have a night guard as well through clenching and grinding. If you get diagnosed with dry mouth or sjogrens they advise dentist every three months as more prone to decay as no saliva to wash it away

I think some people 'police' any thread that seems to refer to medical matters, regardless of if they suffer the same, used to be just we fm sufferers who posted on the original thread that Julie? set up.

I do the tooth clenching/grinding but as you know Jules, I couldn't get on with my mouthguard the dentist made me.

Take care with the squash etc folks as many have aspartame in especially those that say sugar free or low sugar etc and I am sure that's what kicked off my fm, I drank litres of flavoured fizzy water when I had kidney stones as I hate the taste of tap or plain water but it was soon after that the fm started.

Lizx

The rheumatologist reckons mine started because of what I went through last year!!
My mouthguard ends up on the floor most nights...Not sure if I take it out in my sleep or it just falls out...Found it over by the door one morning :-S
I know I have been sleepwalking again, something I haven't done in a while as I found the ironing board in the lounge yesterday morning..Bearing in mind I keep it in the cupboard in the hallway!!!

Jules x

Dawn thanks for filling me in. I will know at least what not to say.

Yes I wear a mouth guard or splint to for the teeth grinding, but the damage is already done from the Sjogren's. Have not been to the dentist since 2008, naughty I know. I have adrenal insufficiency so anything will send me into shock and possible coma. Grrrrrrrrrrr. I just chew the gum and a special liquid of the same brand. Use the dry mouth toothpaste and mouth rinse as well. Winter is a killer, my saliva is barely there now. :-( Will have to get to my dentist soon or my teeth will all be gone.

The fibro has been terrible, big knots up the side of my neck, but has eased a little.

Dawn drink as much pure Cranberry juice as you can for the UTIs or the tabs. will not hurt you. Don't bother with the juice containing sugar, barely any fruit content. My doc said my insides are so dry, even intestines. So uncomfortable. Sjogren's will most likely be the cause as I get them too. A very dry argument. My eyes are hurting so badly and blood red, vision blurry. Not much fun.

Thinking of you all xxx

well looks like back to gps in morning cos am still in pain antibiotics not doing a lot warm tea which is what helps me a lot is being drunk by the bucketful.

MEgirl I couldnt get on with the toothpaste makes me gag dont know why and too much hastle getting the saliva pastilles from drs so just drink loads

Jules my mouthguard is never in in the morning and its a lower one so gawd knows how it ends up all over the place, dead romantic as well arent they.


d x