General Chat

Kay its took two years and several visits to actualy get diagnosed and treated I'm just grateful I'm being sorted out.

edit my Auntie had one of those after her throat cancer. She has to cover it to speak. Yes they used a suction to clear the mucus.

Mel if they spent ***several hours***doing heart traces.!!!!and didnt take a LC reading and didnt reconise the signs of a potential asthma attack from a heart attack !then they want shooting!

edit,
mel its a tracheotomy,,they put an airline direct into your wind pipe via your neck.....

you had a suction to clear your airways.

Kay Im not sure what a traco is so I don't think I have had one. I did have a tube to clear mucus but don't think thats what it is.

thank you Joan I will consider myself told cuz lol x Need to see Dr in two weeks Joan they adjusting them again. I do get scared and when I can't control an attack it hurts so much. They told me to stay off nuts, but not dairy but she mentioned citrus. I will try my best to stick to it even though I live nuts.

at 130 I'm suprised they didnt give you a traco..!!

once they find you the right level of meds it should be a great help.

Jgee....its a horrible thing to suffer from,wouldnt wish a worst enemy with it, very frightening...infact any lung complaint.....

mel will you stop keep saying your bad ..there is a lot worse ..

regarding your health mel make sure you find right meds..

ive had asthma for 30 years .. but from 4 years old it was treated as bronchitis sp..so all my life ive suffered chest probs.... i have to be careful of meds have lots of reactions to them ..and im still scared the spiriva and tiotropium have been the best ive had,, nuts and all dairy food affects me to ..

Kay I have had been in hospital and more than once it was much lower without the inhalers. It was 170 this morning, but I'm on stand by not really knowing how I will be. If you read the start of the thread, I did say I'm whats called an "hospital job" below 130 is really dangerous and yes I've been there too and yes I was very ill. It was before they knew what was happening with my lungs and spent several hours thinking it was a heart attack and doing heart traces. I none to happy this is happening to me, but even bad guys like me get sick ~ its just something I have to learn to live with and get the most out of my life. A virus wipes me out completely but thank god for nebs. The sore throat I have at the mo is a struggle as my throat is closing up. I am just trying to get on with this.

kay mine was 160.... i was in A&E..on oxygen..not for long though got me home with oxygen machine and nebulizer in 24 hours and had lung function nurses in daily for 2 weeks ... thats twice i was treated at home..

If your PF is a low as 160 I'm suprised you wasnt in A&E on an oxygen mask.! thats a dangerous low level....havnt you been advised to get to hospital asp at that low flow?

thats very true Suemaid do you know we have a child died of eczema. Things are very much improved these days which is what keep saying everytime I have a heart monitor strapped to me and go on the nebs.

hi Uzzi, thank you it is certainly helping me and I hope I can help others and they won't wait til its almost too late as I did. x

Hi florence, thank you for your comments. Yes my red is Symbicort 200 I take 2 am and 2 pm and my blue is bricanyl 100 I can take up to 4 doses no more but my grey/purple as many as I need. I also take pills for my allergics. My pf is around 160 and the nebs are my friend. I have had a lot of bad throats from my inhalers and been told they have a mix of steriods and will put on weight and I get frequent headaches. Ifind also y mouth feels coated after taking them so have to rinse often. I feel lucky that I have finally got help, but also worried as i said on another thread so many of my ancesters on one line died young of lung related conditions and this makes me v low. thank you for you kindness shown towards me I know they are working hard to sort me out so soon I hope I can feel stronger.

Good thread Mel,

hi there footie, i have been astmatic for nearly three years. it took 7 months of coughing fits every night and various trips to the doctors before being sent to a chest specialist. after some breathing tests and monitoring my peak flow, he diagnosed me with astma. i have a preventer inhaler called symbicort 400 which i take one puff in am and one puff pm. when i need extra i have a reliever called bricanyl and can take up to 12 puffs in 24/7.

they are both powdered inhalers tasteless and odourless which suits me fine. the ventolin which i tried first made me really sick and couldnt stand the smell.

when i was really bad coughing up to 4 hours a nite and sleeping on the sofa sitting up beacause i couldnt lay down, my peak flow was low at 190. my dr said if it was less than 180 and i had trouble talking i would need to get to hospital and go on a nebuliser. i thankfully have only had this twice and that was early days then.

mostly now my astma is under control and my peak flow is good around450/500. there are some foods which can make me wheezy and nuts is one of them along with chocolate worst luck.

i am also allergic to paracetamol and all antiinflamatory tablets as they seriously bring on an astma attack. so when i get a severe headache, i can only try to lie down and sleep if poss to get rid of the pain..

also november in the uk is the worst month for sufferers as it is the dampest time of year. but going into a hot house does me no good, i prefer it cooler and couldnt go abroad where its really hot, no way.

it took about 6 weeks once i got the right inhalers and then felt brand new. so i hope you find soon which suits you and keep checking your peak flow throughout the day.

good luck florence

Hi Rach, she (my Dr) is trying to maintain it. My pf was 160 again today so still falling short of about 300+. She is concerned about all the rashes I am getting and thinks they are not helping the asthma so she said cut out all nuts, but tbh I eat an helck of a lot of them for energy instead of something sugary. I have to try to keep my blood sugars up also so I should really have more glucose.

Hi Mel,

Hope your asthma is getting better. Did they think of any alternatives to nuts, or any particular nuts that you can still have?

Rach

As way of an update: I been told to lay off the nuts, (which is going to be extremly difficult for me as a nut erm lover lol) but I'm gunna give it a shot and hopefully my pf will at least stabalise if not begin to rise.

Hi Katherine,

my peak flow was 160 today so a big struggle and no we had torrential rain and a thunderstorm have ordered sun for tomorrow.

M x

Hi Rach,

We are looking at diet for my other allegies esp wheat guess it is a process of illimination thank you for your kind words.

M x

Hi Libby,

Thank you for you kind words. Exorex is one think I haven't tried and will look out for. i remember being free of it when pregnant too must be down to hormones. Yes, the psoriasis is the least of my problems. Thank you again.

M x