General Chat

Patricia, you must be so glad you tried the chiropractor. I do hope you can continue with the state you are in now, and not deteriorate again too badly.


I was given amitriptyline but it didn't help with better sleep which was what it was for so I gave up on it. Had citalopram for the ocd but it didn't work either so not on any antidepressants now.

I get uncomfy wearing a bra so go without round the house, whenever I can. I definitely find I have more discomfort on my left side than my right, all different parts on the left have pain and feel sore, whether my ribs, under that arm, my arm, my b*mcheek as well lol
My right shoulder plays up as I have calcific tendonitis in there so often so painful it makes me feel sick.

It's no fun falling apart like this and I wish I could go back to the time when I had loads of energy and could go on for hours without pain or discomfort.

Lizx

Julieann, i guess im lucky i really dont leave the house much only to walk the babies, god forbid me talking to someone in the street thay would probably only get some garbled mutterings lol, much prefer talking with my fingers lol, i take;.............morning 50mg amytriptilene, iron tab, metformin, pregabalin, tramodol, morphine.

afternoon ;tramodol, pregabalin metformin, iron,

bedtime slow release morphine, iron, 50mg amytriptiline, lisinopril and citalopram metformin, so i rattle xx

julieann i think your amazing for managing work i know there not very supportive either unless they have changed in the last 12 months xx

hi patricia so pleased you have got somewhere with your pain relieve, my mum fell down the work stairs, she didnt make a fuss and endded up with sciatica, and other problems, she also went to see a chiropractor who fixed her , although when someone is ill in the family we all get how she has sciatica lol i agree its horrendous, so hope you stain relatively pain free xx

liz i have days like that when i sit and remember looking after the kids all day thaen going to work in the evenings to a pub that never shut so could be home 5 in the morning , id have a hours kip and managed even thrived on it sadley now i cant even manage the stairs lol mayby burnt me self out some would say but dont think so guess the stress that came with my sons aspergers didnt help but id do all that again to have what i have now ,
hope your pain is minamel today liz xxxx

Hello
Thank you for sharing your pain experiences, whilst not in pain to the degree that some of you are I can so relate to the different kinds of pain. I find that I can cope with some pain to a level that almost seems unbelievable but other pain can easily reduce me to a wreck.

I've suffered joint pain on and off since my teens when I was told it was either growing pains or just one of those things. More recently my doctor has helpfully been ready to put everything down to my mental health issues, depression and anxiety, to the point at which I am reluctant to go back and raise the issue again.

Currently I am having problems with my back, neck and shoulders. It started about a month ago with a sudden stabbing pain in my shoulder and since then has been happening at irregular intervals. I actually thought that the worst of it was over until the other day when walking out to the car I felt that same stabbing pain in my back. Add to that I've been feeling really dizzy today and I think that it's the doctors for me tomorrow.

Have to say that it does worry me because my maternal gran suffers from rheumatoid arthritis and my mum is fighting to have her symptoms diagnosed, her blood tests say she doesn't have it the symptoms say she does. And My dad is currently undergoing tests to find out what's wrong with him having started with similar symptoms to his mum which include neck/shoulder pain, although I can't recall exactly what she suffers from. Probably just as well because if I could remember I'd probably only scare myself by googling it.

Sarah

Hi Pusser cat its star here lovely to see you again. Hope you dont mind me asking my OA has over the last 6 mnths got worse(like a few i have a high pain threshold hence why i left it so long) last week i went to the drs and she gave several tablets to try so my question is one of them was amytiptiline 25-50mg at night i decided to try that one first as unfortunately no matter what i can have it might effect my asthma. After 3 nights i found my self ketting palptitions and it would initially make me sleepy but after a couple of hours i woke up and just couldnt go back luckily it was school hols. Does this sound like a normal reaction. I must admit i did stop then and am now trying naproxen twice a day its helping the pain in my hands and knees but not totally the pain in my toes. I no i probably should have given amytriptiline more time but i am working full time as a teaching assistant and knew i probably wouldnt cope with restless nights and i cant give up work/reduce my hours just yet.

Also where is the best place to look for a memory foam matress as Tony has now got back/shoulder problems so would benefit us both.

Say hi to Speckly luv to you both

Star

Hello sarah, i live in shropshire too, thanks for adding , the car thing sounds like a trapped nerve
but the other pain since a teen really needs sorting out, doctors will try every other reason apart from what it is in my experience
im really lucky my gp is also a specialist in rheumatolegy and after trying every type of pain killer that didnt work she sent me to see a consultant who after 10 yrs diagnosed with fibro, now reconised as a autoimune illness like os, ra, ms, etc.
Sarah can you see a differnt doctor or asked to be refered, i would type your symptoms in on line take it with a pinch of salt but you may have an idea or if you want me to do i wil just send me a private message if you want, fibro can be more disabling than the autoimune disorders confirmed from blood test, which is a raised inflamartory marker, although fibro dosent have this marker, i also have ms now so i dont know which pain ache is what now, ive spent times on scooters wheel chairs etc im now walking but get a lot of double vision im sure that makes my spelling twice as bad, i really hope you get some thing sorted too love lorraine xx

hello star lovely to see you too, funny you should say that about the amytriptilene, i was on 50 mg per night to help with the pain and sleep with the fibro and stenosis of the spine, when i was diagnosed with ms due to the different pain which was like being burnt littearly she has put me on 25 then another coming to 50 in the day time , i thought i would be knocked out but im not i feel better in myself and the burning has gone to just nettle stinging, i see consultant next week to discuss some tablets, but when speckys was increased he slept for 3 days practically , i admit i was really scared to take the amitripilene when i read the leaflet, i talked it over with my doc she said its only people that have heart conditions that need monitoring, have you tried lyrica that is also good hope you find something soon xx

Hi all, I just want to say hello to Star and to Sarah, don't let the doctor make your depression/anxiety the scapegoat for your pain. Are you on anything for the depression? The two things need to be treated seperately to some extent but some medication could do for both things, like taking an antidepressant to help the depression might also ease the tension, so helping with the pain in your neck and shoulders. I have a lot of tension often and can feel my neck and the back of my head tighten up like a tight band round my head.
Different people have different reactions to medication but you always need to give it a few weeks to really work. There are alternative homeopathic medications which help anxiety but you cannot take them with things from the doctor so do discuss with the doc and also with someone at a proper health food place or somewhere like H and B.

Puss, I too used to work two jobs when young, and then when I was a single Mum would work several jobs, even taking my son out with me to do jewellery parties till he started play school and had to be up early. When my o.h. calls me lazy, or says he has been at work for x amount of hours - his choice to do the overtime, he earns well without so much of it - I remind him that while he was still in school (toyboy) I was out to work and not driving to work either, had to cycle or walk or get two buses, and still managed to work several evenings a week on my feet in a Wimpy Bar or behind a nightclub bar till 2 am, then back to the office job in the day time , 9 -- 5.30 and Saturday mornings.
Hasn't been many years in my life that I wasn't working as well as caring for parents and son, and doing up houses etc as well as being on local Community committees etc

No wonder our bodies wear out lol

Lizx

Yep liz totally agree with everything you have saidxx what people want is a docter believeing there pain instead of giving it the benefit of the doubt all the time.
Due to specky have a tear and ruptured disk and stenosis of the spine, when he first saw our doctor she examined him and by the tenderness and painfull places she new what was probably wrong, so she sent him for a mri which confirmed what she had thought, i know for a fact any other doctor would have played it down, so if your not happy with a consultation see another doctor, half the time they do just hope you will go away apart from the dedicated few, which my doctor said was, "if your in pain we need to get to the bottom of it, even if it means an explority, i think some people are depressed because they are in loads of pain but this is misconstuid by the docs, so i gree stick with the medication and give it time.

When i was given pregabalin and was told to creep up till the required amount of 300mg, i just started on the 3oo i couldnt walk or talk i felt as drunk as a lord lol so funny but norty lol xxx

I'm on duloxetine for the depression and anxiety after trying loads of others including one that I really thought was going to kill me. I'm also in the middle of a course of CBT which despite my initial doubts does actually seem to be helping my anxiety.
I think I've found out which of the doctors at our practice I need to see about my pains, a different one to the one I normally see but if it gets me taken seriously worth it.

I have every sympathy for those of you suffering with fibro, I have a friend with it on top of other problems and have seen what it does to her. Indeed she told me that how i suffer was how she started out. Such a pity that it is so often not taken seriously.

hi all

nice to see so many what seem to be new names adding, ,
and getting help from here,
cos it does help to chat about it,

i was taking naproxen but it started to hurt my stomach,
even my boss said if i got that stop taking it immediately,
so that was another on list,
spose its all anti inflamatrys really with me,

i took duloxetine , and it was good , but the headaches at time were still horrendous, looking back now, im sure that was a lot to do with my blood pressure, and doctors wouldnt accept what my pain specialist was telling um, cos she told them to give me blood pressure medication bout three years ago,
instead i was messed about from one to other, from stays in hospital with severity of pain, in the end my doc the nice GP i always see did give me some , he was pleased last time i saw him it was normal reading,
TA DA, theres a suprise lmao

hi sarah glad you have a doctor you can chaat to it was the nurse of our practise who recomended mine, hope you reach some diagnosis soo, fm was the first thing that crossed my mind when you put your symptoms down xx
the extra amytriptilene is really helping me now with the burning arond my ribs now, i havent got long to wait now to see consultant xx
Julieann i took duloxitine once but felt no benefit from it hope its helping you xxx

oh dear suffering at moment i have a tiny little bit of morphine left which i would need in the morning whilst specky picks mine up, thing is if you ask before its ran out they tell you off and then when you need it you go without , fingers crossed i dont suffer to much xx

i dont take duloxetine anymore puss
it wasnt really working, tho it only lifted mymood,
i felt crap just didnt care too much, lmao,

its like thtat where i work regarding the morphine,
doctors hate sending scripts over to our chemist before patient has completely run out, we say, yeh but by monday morning they got none, and you dont send script till monday afternoon,
oh yeh they say, then try sort it out,
or even ask the patient to go in jsut to say to doc they need it , then they get a script there and then, ( i could bang my head sometimes, i tell you, its lack of common sense with some of surgerys, )

hope you can hold out love

thanks julieanne,, they also say not to miss a dose lol, only one doc at our surgery will supply it she is the head and has left notes for other GPs, i do find im telling them there job sometimes, didnt ask for the ruddy illness, there is no cure so im hardley going to become addicted and only on a small amount as it isrant over lol xx

My OH was given diamorphine because of serious pain, but has luckily not felt the need to open the bottle. He doesnt want to go down that route before its necessary.

that is how i felt jean but the degree of pain said otherwise and i have a very high pain threshold too,but saying that for nerve damage pain it isnt that good, it kinda takes the horrendous burning away to a sting but your not that aware, im very strict with my usage im only 42 and worry i will run out of options in a few yrs, sorry tht he suffers too jean xxx

hello mr pdoff, im sorry you are suffering like that , with any chest pain you should have called your doc, and advise you to do so, not that i do lol, really hope you get some sleep x

In this week's Take a Break there are some letters from people with cfs, ME and fm, and other problems, saying they have been encouraged to take up knitting or other crafts - some of them go to a group where they knit and chat and it helps them cope with pain, then they can continue to do it at home too.

Apparently it is recommended by some pain relief clinics etc.

Lizx

hi liz will have a look a friend passes them to me when she has read them, i wouldnt be able to knit my hands and arms wouldn let me lol.

Thankgod we get to sleep on stuff, i thought id had enough of the pain last night , but managed a good sleep and fell better for it and pain not as bad xx

About 35 years ago I was unlucky enough to get an anal fissure. Toilet movements were painful then the pain became chronic before I presented the complaint to my GP. All kinds of ointments didn't work and the pain became excruciating. Surgery was the ultimate cure.

How was the op david , i saw this being done on embaressing bodies, where the piles was burnt away with this new thingy. a lot of woman who are pregnant suffer from them too xx