General Chat

Liz, I know exactly where my pains are coming from, my arthritis is in my knees, hands, toes, spine but that's a mess anyway. The fm is a different pain and sciatica different altogether, causes me to wince and take a quick intake of breath.
My cancer doctor has told me to report any different pain I get to him, however small, he then has it checked out to make sure it isn't cancer spreading.

Julie Ann, I also get flashbacks of dreams, and often dream the same one a few times with months in between. My dreams are so vivid sometimes, I have trouble deciding if it was a dream or it actually happened. I remember them for weeks afterwards which doesn't help.
Your dreams where things happen and comes true later, I don't like those at all, and I usually know which they are because I worry for days on end about them.
I'm positive nightmares are down to broken sleep, never used to get them when I slept well.

Caz xx

Well I have the bad dreams and wierd dreams and don't take medication from the doctor so I think it is down to the disturbed sleep we sufferers get and the constant tiredness.

I never know if it is my arthritis or fm making me ache altho the ribs aching are definitely fm. I get fed up with worrying about whether a pain is something else or fm, don't want things put down to fm if they ought to be investigated further or dealt with in a different way but how do we know, docs seem happy to keep saying fm, blame it on fm.

Lizx

hi caz
just reading bout you saying you think its not your medication causing nightmares
i dont think thats what causes mine, never have
i started getting um few year ago now,

bad ones bout my son, those mad eme cry

ones bout abandoned babys, dreamsrelating to item i see on news next day , they are bit weird,

also lots of dreams about my mam, (mam been gone now 15 years) dreamt she came back but not for long, and had to return

then theres the flash backs of dreams ive had, and they crop up in whatever im doing, the just come to mind,i see a clip of a dream i had weeks ago, its like some onesaying remember this,

cooking tea earlier i had flash back of a dream i had weeks ago i didnt remember at time,
it would apear it was something to do with old school friends daughter was in school with, like the young man whose funeral we went to yesterday, i can see now, the coach trip, lads, pulling in to somewhere off a motorway on way to or back from somewhere visited for day,
see fighting at the roadside place,

thats how the boy died, on trip back from day out at man u footy, on motorway

in a way you learn to live with these freaky things,
just dont want the ones involving family
doctor said if i went to yoga maybe it would help me relax

I find this thread so interesting, we all have the same symptoms etc, but all on different medication. I have weight gain, but it's my tablets for cancer that has done that doctor told me. I have the nightmares and wake up crying, I don't get the proper sleep because of pain from fm and sciatica. Now I have to live with the knowledge that they can't do anything more to help my back re slipped discs, because my back is in such a bad way with other things.
I'm wondering if the nightmares are coming not from the medication but the disturbed sleep, I never used to have them, but now they involve family which is when I wake up crying, but also I now have aliens in my bedroom lol, which is when I wake up scared out of my wits.

I have 18 items on my repeat prescription, three pages stapled together, yet I don't think it's any of the medication that's doing it, I am convinced it is lack of proper sleep.
Hope this makes sense, it's still early morning and I have yet to wake up.

Caz xx

Hi Liz, good to see you about, I think there was a thread up a while back asking about you, and strangely I was thinking about you only yesterday before I got back on here - have had computer problems with aol.

I am not taking any medication, I just can't cope with the thought of putting on more weight and need to lose some to feel better, I walk round like an old dear of ninety odd! None of my clothes look nice, I look like a beached whale and if I could have a couple of nights of undisturbed sleep I am sue I would feel better - it's that that gets me down the most. I too have dreadful dreams and wake up sobbing, feeling drained.

I watched the programme about mercury in amalgam tooth fillings last night and have wondered before if that is to blame for my problems, but as I could not afford to have the fillings removed, and that disturbs the toxins anyway, have no choice but to take my chance.

Hope things get better for you all soon
love
Lizxx

SS
im sorry to hear how bad you took that news, and how harsh really it seems it was told

my neurologist is nice guy, hes gently spoken, and smiles at me a lot,
like an older friend, he keeps inpressing that ive done well compared to how he first saw me in 2007, i told him, i could of willingly jumpeed off nearest bridge, if it werent for the kids ,

the headaches at that point were horrendous, and i had a little granchild to look forward to,

i still get the headaches, and like you say the sick ness is horrible

the nightmares are pretty horrendous too,
last night i wokke up crying again, had bad one bout my son again, i was criying i my sleep and crying real tears when i woke up, it felt like i was choking with crying in my sleep,

i took tramadol but i had to be weened of um, cos i got so used to um, i could carry on a normal day with um but still had headaches,
they just didnt touch um, i was taking paracetamol with um too,
they good wen they work though

hope your coping well tho
xxx

Julie, I was devastated when the consultant told me in August that there was little chance of me making any significant improvement from where I'm at now and the best I can hope for is to not get worse, because it's been 14 years now.

Dawnie, I'm used to the pain, but I couldn't handle the feeling sick.

I'm getting on with the Tramadol pretty well, but have discovered today that I can't take them without food (or I get slightly loopy too LOL). Last time I listen to what I find on a website LOL.

hi all
reading on here about weight gain,
reasureing in a way , ive put on weight a bit lately,
bout a stone over last few months, its hard to get off,
i wouldnt mind reducing it a bit, so i felt comfy, but its almost as tho my bodys just swelling up sometimes,

what ever i wear im uncomfy, my ribs ache,

wrist is still bad,
saw my neurologist week before last , he said to carry on taking the efexor, (venlafaxine)
cos they have had an improvement in my ability to manage FM
i told him bout my weight and apparenetly these tablets are sometiomes used to help weight loss, i said well theyve had oposite effect on me,
i also read they can effect weight,
hes suggested staying on dosage till july now and see him then

the problem is he said you never get rid of symptoms completely, just make them easier to cope with,
and less painful

well i came home and hubby said what doc say,
i told him he thinks im doing well,
im sure hubby thougth that meant im beter mirraculous cure,
i can now decorate the house,
cos hes flippiin ticked and winged about doing it himself,
lol
sending you all hugs

hello everyone.
Barbara Ihave put on so much weight and am not on Lyrica my doctor says its not any of the pills just my age, I am only 41.

Cant wait for the end of month got the pain clinic so hoping they wille able to sort me out.

I have never felt as ill as I do now, the sjogrens has left me with an almost permanent husky voice and a cough and am so fed up with it all dont have a life any more just an existance.

Liz my Dr upped my co-codamol and itmade me so sick so changed it to dihydrocodeine and I have to weigh up whichi s easiest to put up with pain or being sick. Tramadol really sent me doolally.
have learnt over the years not to start any new tablets unless hubby is around as I seem to react more and more to tablets.

Take care everyone

d xx

I have a lot of problems when it comes to sleep. I've just got myself the Paul McKenna "I Can Make You Sleep" book. It has a CD with it. I'll let you know how I get on with it. It's not just aimed at insomniacs but also those who don't get refreshing sleep or who wake up a lot during the night.

I don't know if people noticed but I've not been around much since December. I had problems start up with pains in my eyes and increased photophobia. My research and discussion with the GP seems to indicate that it's to do with the muscles going into spasm. I've finally got the eye clinic appointment through for saturday (it's only taken two months and a kick up the bum from the GP). More than any other of my symptoms, this has really got me down.

I've also just started Tramadol instead of Codeine as I appear to have developed an allergy to the latter and it was making me incredibly nauseous. It seems to agree with me so far.

Barbara, I think I've been very lucky with Lyrica in that I didn't gain weight. In fact, as I made a concentrated effort I've lost weight during the time I've been on it. (over a stone... it took me about 7 months). I'm usually unlucky with side affects, I get the rare ones no one else does but I've escaped the many pit falls of Lyrica. What dose are you on? Perhaps you need to look at reducing it slightly, or maybe other factors have changed that you've not noticed. Have you mentioned it to your GP? They might have some advice.

Hi. I have never written anything on here before but here goes. I was only diagnosed last April with Fibro but understand I may have had it for 40 years, no wonder I have always ached and felt awful. I am glad to read that my weight gain probably as a lot to do with the Lyrica, I have put on over 2stone and am not eating anything different, apart from chocs at Christmas. The only thing I can say about Lyrica is it made a new person of me althougha much fatter one. The pains in my legs, arms and face are not as bad now and that in itself makes me feel better.

I am finding sleeping very difficult wake up at least three times per night but I like to read so providing my other half is asleep I pick up a book..

Hope this thread keeps running as I find it very interesting.

Barbara

i bent down and have been walking like a 110 yr od today but im smiling and staying that way at least when i reach a 110 i will know how to walk lol, ruddy illnessxxxxxxxx

hi all
your welcome steve for the info

i attended a pain clinic but after several jabs in shoulders with painrelief
i ended up with the neurologist,
to rule out any major problem with brain,
relieved he found a brain actually
anyway, hes got me on medication im on
it doesnt help with the pain from FM much, just headaches

it doesnt get rid of um completely, just makes um easier

hope everyones managing to keep warm
and keepin cheerful
love
julie

HI Julie Ann,
Thanks for the web site tip, have added it to my favorites. Originally found FM info on The Environmental Illness resource site.

I had results from consultant regarding MRI 2 wks ago. They can't find anything again, so re-referred back to the pain clinic. She also sent them a reminder, as they still haven't followed up the neck denevation treatment I had last May.

Anyway I think its time for a pint.

Nite
Steve.

hi steve
your welcome
anyone is on here

the musculo skeletal diagnosis you got is like i had from a rheumatologist,
he diagnosed it cos he was annoyed my GP made a diagnosis,
my GP asked him to see me for fibromyalgia
he wrote to my GP saying it was NOT that it was Musculo skel,
my GP laughed his head off when i saw him, he said its the same thing, he knew why the doc had said he was wrong, it was a power thing, tut
bleepin specialist,
anyways my GP has been sympathetic thankfully
tho theres not much he can give me to treat it,
as it doesnt respond to so much stuff,

FM is also been linked to post traumatic stress and a few other things,
theres a god fibromyalgia write up on the arthritus website ARC

Evening Ladies,
Forgive me for reading through your thead. Dawnie mentioned in a post last week saying she had FM, my curiosity lead me to google this. The list of symptoms ticked many of the boxes regarding the over 7yrs of neck pain & over 5 years of back hip & leg pain, disturbed vision, etc I've suffered from.
Although I haven't been diagnosed with FM & may not be. But after x-ray, numerous blood tests, 2 MRIs physio etc.....sounds familiar? The closest they've got is musco-skeletal pain. An ambigious name, bit like calling a broken arm - arm ache.
This just to let you know I understand the pain, headaches, tiredness & frustration you are enduring. The trying to explain your illness to Dr or consultant & just getting that blank look on their face, as if they don't believe you.
Try to keep positive ladies & maybe we'll all beat this.

Regards,
Steve.

Hi all, not sure why this thread lapsed, I suppose we were all busy with other things!

I get the pain in ribs a lot and am getting fatter and fatter through lack of exercise, it just hurts too much, my legs and feet are bad with arthritis, my knees especially and it hurts to sit down or get up again in my knees and hips, my shoulders hurt constantly and I think I have my jaw clenched so often, I just can't relax. The worst part of fm for me is the lack of decent sleep, never ever do I wake up feeling refreshed, even if I go back and have an extra hour or so, have done too much over the past three days so will be staying in bed longer tomorrow, had to get up for doc's apptmt today or I would have rested today, flipping chronic fatigue syndrome makes me feel useless. Have to go and get more blood tests for thyroid again so will do that this week when I find out the times - they only do them mornings at our surgery so that's out for me, but can go to local community hospital and get them done and can do other errands en route or after luckily. Anytime up to 4pm so will suit me better.

Am only on 5htp as I try not to use painkillers unless really sore and won't take any more antidepressants as they didn't help nor did the amitryp.for sleeping. The almost constant damp weather we have had over the last two years has got me down too.

Take care and stay warm, I am going to have to watch my diet now and try and lost at least a stone, sick of looking like Mr Blobby!

LIzxx

i find the my leg keeps me awake its like sciatica, and the pain that gets me down is in my neck face and gums and shoulders , really drags me down, due a top up now lol, i try not to use the morph, but some days ive had enough xxx

i read thats a side effect puss,
to lyrica,

i find my ribs really ache, on the right side,
last week it was all round my back where ribs are,
i fellt like bobby ball where he puts his hands on his waist high up , cos i was in so much pain, i didnt think tey took me seriously yer

we try to make lite of it dont we