General Chat

well in an hours time will be going back to Drs, Pain clinic Dr rang PCT about patches they wont let me have and have to try other tablets first if they dont work then they will let me have patches.

I feel so bad at the minute everything hurts so much am in tears with it and sooo tired, hubby has put sofa bed out again in front room so can spend day lying down but then he doesnt have to keep going up and down stairs to me.
Hes having to put me in wheelchair to go out as cant walk far but hey at least it gives him some exercise.

Really am at end of my tether now and yes i know (as i have been told by people in no uncertain terms) that other people have worse things than this but its really wearing me down, Tiddler got school trip on friday and she keeps asking me to go but i cant not even sure would make it onto the coach .

Sorry moan over with

Hope you are all coping ok.

d xx

Hi Falling Leaves,
Although I haven't been diagnosed with FM, but with musco-skeletal pain. I have most of the symptoms of FM. As I understand it. There are no specific test, ie blood or MRI scan for FM. But is diagnosed from the symptoms, after all other possible causes are ruled out.

These two websites will help explain FM;

http://www.arc.org.uk/arthinfo/patpubs/6013/6013.asp

http://www.ei-resource.org/illness-information/environmental-illnesses/fibromyalgia-(fms)/

Regards,
Steve

Morning,

I was wondering if you help by letting me know what tests you have to have to determine wether you have Fibromyalgia?
x

Hi all, I answered the other thread re fm, but can't find it. I also suffer this miserable ailment, and the best medicine so far is knowing that there are other people out there to empathise with. I see we have a man on here, was just wondering if only women suffer. Do any of you get the pain that feels like pins being driven up you fingernails?? This one is harder to cope with than the constant pains in muscles, joints ect, because it is so intense and sudden.. Hope you don't mind me butting in, but it is so nice to moan to other sufferers who can understand how one feels. Lots of love and sympathy, Nina from Sheffield.

At last the thread has appeared was beginning to think it was lost forever....not i am going to have a read.

See you shortly.

How about this one

Nudging for Diane

Lizx

Barbara, well done for doing as much as you can when you can. All we can do on here is share experiences and suggestions for assistance in whatever guise, and to support each other when we are low. I am so fed up of not getting the right kind of sleep, that's the worst aspect of fm for me, I can cope with the pain if I can feel a bit refreshed but it rarely happens, and when you have an o.h. who doesn't understand and calls you lazy, it can be very upsetting.
You take care, treat yourself kindly and save some energy for things you like to do, not what you have to do, ironing can be cut to a minimum if you hang things up from the machine or line, I rarely iron things these days, the bed is still comfy, my clothes look ok and I save on the electricity too lol

Lizx

Hi. Never done this before but reading your comments has helped me understand this thing called Fibromyalgia. My GP told me that this is what I have but as I have had it for about 40 years not a lot can be done. I have ironed today, then made dinner and I feel as if I have done a 50 mile walk. Sorry if it sounds as if I am moaning but all my life | have looked after other people and now I cannot manage without my crutches and I must admit am propably frightened of the future. Any help through this link will be gratefully accepted.

Barbara

Bless you Julie, horrible isn't it? My knees have been so bad but never sure if it is the fm or arthritis, as I have both in my knees and ankles.

Lizx

you sometimes think the pain is managable when its eased off, then it comes back with vengence, im suffering this weekend,
all joints painful
head pain since saturday morning
and nausea, from the pain

wrists knees and ankles particularly bad,

im so sick of this complaint, soooooo sick of it,

love to all you guys

Glad you are getting all those things, and a great idea to get an electric scooter, Dawnie, only take lessons from Puss with hers lol before you go far in it lol

Puss, I have had blood tests galore for iron and thyroid and my doctor keeps saying how remarkably healthy I seem when she sees the test results, but she knows I am tatt and can't seem to help me any further. So frustrating when my head wants to do so much and my body won't let me!
I think I need a slave who would act on my every command!
Take care all

Lizxx

i think this is part of fybromyalgia, ive just been given iron tablets for anemia, been feeling dreadfull couldnt move for a few days got breathless and had to crawl up the stairs, starting to feel better now xx

Well occupational therapist came out this week, got rails going in in cloakroom and bath and frame round toilet upstairs and padded toilet seats in both. Also rail at side of bed to help me get up and move in night. Hes also told me to apply for blue badge.

Wheelchair has been ordered and hubby and my dad are nagging me to get electric scooter as well so am on look out for one, going tohave to raid last of savings for it but hey ho if i get about will be worth it just trying to get brain round the sudden chamge in what i can do, at least this way wont be stuck inbed can get in fresh air without having to wear myself out or drive the car which I dont trust myself in now.

What an old crock

Sue
there are so many best to look it up but theres widespread pain and they go on certain trigger points to diagnose it, it doesnt show up on blood tests. Fatigue, headaches, the pain in your body can be from burning to stabbing, poor concentration and forgetful ness we call it fibro fog and speech goes weird you know what you are menat to say but what comes out is all back to front ot doesnt make sense.

Hope that helps for starters

d x

What are the symptoms off fibromyalgia please?

before i was diagnosed with fm, i was really distressed due to lack of sleep, but im so lucky, this is what i take and 5 out of 7 nites i get a good sleep xx
50mg amyltriptilene 10mg morphine 20mg citalopram, this makes me sleep probably knock a horse out, oh and 2 tramodol, too xx
but................ me hips and had and knee joints are swollen and pain full lol

Because we look relatively ok, people don't realise the pain and discomfort or the lack of good sleep, I think for me that is the most debilitating, I could cope with the pain better if I had a good sleep.

Take care,
Lizxx

hi liz

its hard living with the idea isnt it, that you cant do what you want, and that others think your ok to do it,

its my biggest problem, learning not to get mad and get on with it,
i suffer in long run,
but its hard not to

Easily done Dawnie, I keep getting called Lazy by o.h. because I don't do much round the house, I can't do that and have any tiny bit of a life so I do what I want to do most of the time instead of what he expects me to do, you're a long time dead! if he wants the floor cleaned, let him b****y do it, he is the one who never wipes his feet when in from the garden and traipses through to the loo upstairs, I keep telling him to get an extension with a loo downstairs but he won't bother!
Hope you feel better soon and get some help.

Lizx